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newly diagnosed son

hibbsy

Hello there, we are new to this forum and we are looking for help and support that anyone can give please.

Our 11 year old son has just been diagnosed with a-typical autism.He also has a speech and language problem, dyslexia (which we have known about for a couple of years) and a severe anxiety problem.

He has had a severe melt down at school as he is struggling with the pressures of the impending SATS tests this year and feels inadequate against his peers. He does have CAMHS involvement, SENCO support, and we are liasing with an educational psychologist, but we are stunned at this new autism diagnosis and struggling to come to terms with both that, and our sons low self esteem, awful anxiety issues and very low state of mind, it really is heartbreaking and we are struggling to know how to support him best. He has constant outbursts and meltdowns, can be rather aggressive at times, followed by tears upon tears and then becomes withdrawn and negative.

We are completely exhausted and concerned about the future and how we are going to get through this. Any help and advice would be so gratefully recieved!

Parents

  • Hi Again'

    Pleased to hear you have a plan of action for your son's transition to the high school, it really is a daunting prospect isn't it? Llike you, i worry how my son will cope with the different class teachers for different lessons and the unpredictability of the school day. I had to pick him up at lunchtime yesterday as the school had to close due to a burst water pipe....he came out of class in tears, he just couldn't cope with the change in his routine, and was wound up then for most of the afternoon.

    We have a meeting planned for next week with the head teacher and SENCO staff of his high school with a view to ensuring the transition there goes as smoothly as possible, and also a meeting with primary school staff next week to discuss whether my son sits the impending SATS tests. CAHMS say a definate no as they are worried for his mental state and feel he wont cope when he gains a lower result than he is striving for....his class teacher feels he should sit the SATS and we should be preparing him for a level 3 (which my son wont accept at the moment!)....and us parents? well, we sit somewhere in the middle, i think if he doesn't sit any SATS it will shatter his very fragile self esteem, but i also feel he needs help to come to terms with his expectations of himself (he doesn't know yet that he is autistic, he thinks he is "just dyslexic and needs to work harder"...his words, and his teachers over the years!)

    Looking forward to some progress with the schools over the next few weeks, and to being able to feel more positive by being able to do something.

    Good luck with your meetings too, i really do feel it's essential. A shame you are losing your ssw, thats so hard, but i really hope you have great staff, moving forward.

    Sending you once again, my very best wishes

Reply

  • Hi Again'

    Pleased to hear you have a plan of action for your son's transition to the high school, it really is a daunting prospect isn't it? Llike you, i worry how my son will cope with the different class teachers for different lessons and the unpredictability of the school day. I had to pick him up at lunchtime yesterday as the school had to close due to a burst water pipe....he came out of class in tears, he just couldn't cope with the change in his routine, and was wound up then for most of the afternoon.

    We have a meeting planned for next week with the head teacher and SENCO staff of his high school with a view to ensuring the transition there goes as smoothly as possible, and also a meeting with primary school staff next week to discuss whether my son sits the impending SATS tests. CAHMS say a definate no as they are worried for his mental state and feel he wont cope when he gains a lower result than he is striving for....his class teacher feels he should sit the SATS and we should be preparing him for a level 3 (which my son wont accept at the moment!)....and us parents? well, we sit somewhere in the middle, i think if he doesn't sit any SATS it will shatter his very fragile self esteem, but i also feel he needs help to come to terms with his expectations of himself (he doesn't know yet that he is autistic, he thinks he is "just dyslexic and needs to work harder"...his words, and his teachers over the years!)

    Looking forward to some progress with the schools over the next few weeks, and to being able to feel more positive by being able to do something.

    Good luck with your meetings too, i really do feel it's essential. A shame you are losing your ssw, thats so hard, but i really hope you have great staff, moving forward.

    Sending you once again, my very best wishes

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