newly diagnosed son

Hello there, we are new to this forum and we are looking for help and support that anyone can give please.

Our 11 year old son has just been diagnosed with a-typical autism.He also has a speech and language problem, dyslexia (which we have known about for a couple of years) and a severe anxiety problem.

He has had a severe melt down at school as he is struggling with the pressures of the impending SATS tests this year and feels inadequate against his peers. He does have CAMHS involvement, SENCO support, and we are liasing with an educational psychologist, but we are stunned at this new autism diagnosis and struggling to come to terms with both that, and our sons low self esteem, awful anxiety issues and very low state of mind, it really is heartbreaking and we are struggling to know how to support him best. He has constant outbursts and meltdowns, can be rather aggressive at times, followed by tears upon tears and then becomes withdrawn and negative.

We are completely exhausted and concerned about the future and how we are going to get through this. Any help and advice would be so gratefully recieved!

Parents
  • thank you so much for taking the time to reply, it really does make a difference to know that people out there are going through the same sresses and concerns as us, and take the time to reply.

    our son is a gorgeous, sensitive loving boy who everyone who comes in contact with him says how special he is. His anxiety does play a huge part in his behaviour and we do struggle on a daily basis to contain it. we also have a 7yr old little girl who adores him and mothers him. On a good day they are inseperable...but on a bad day she really does get the brunt of it, and i do worry for her...although at the moment she forgives him anything!

    the school are working on whether to allow him to do the SATS as they feel it could push him over the edge when he gets results which are well below what he is aiming for. (He wants a 4, but is currently on target to recieve a 2). he does not accept this at all...he works his socks off but his learning needs mean that he is unlikely to be on an educational level that is on the same as his peers. We as his parents are fine with this, as we are so proud of how hard he works and he never gives up! he is currently struggling to come back from an emotional breakdown due to the pressures he puts on himself and we are aware we have to tread extremely carefully with him. the meltdowns at home are getting worse and worse with either really angry outbursts, or him being so low about his life and not wanting to carry on...heartbreaking to hear!

    We are pleased that you are managing to work through your own issues with your son. i hope you dont mind me asking, but could i ask what radical changes you found helpful for your son, just wonder whether it was something personal to your family, or whether we could be missing something that could really help him?

    Thank you once again, and my best wishes to you.

Reply
  • thank you so much for taking the time to reply, it really does make a difference to know that people out there are going through the same sresses and concerns as us, and take the time to reply.

    our son is a gorgeous, sensitive loving boy who everyone who comes in contact with him says how special he is. His anxiety does play a huge part in his behaviour and we do struggle on a daily basis to contain it. we also have a 7yr old little girl who adores him and mothers him. On a good day they are inseperable...but on a bad day she really does get the brunt of it, and i do worry for her...although at the moment she forgives him anything!

    the school are working on whether to allow him to do the SATS as they feel it could push him over the edge when he gets results which are well below what he is aiming for. (He wants a 4, but is currently on target to recieve a 2). he does not accept this at all...he works his socks off but his learning needs mean that he is unlikely to be on an educational level that is on the same as his peers. We as his parents are fine with this, as we are so proud of how hard he works and he never gives up! he is currently struggling to come back from an emotional breakdown due to the pressures he puts on himself and we are aware we have to tread extremely carefully with him. the meltdowns at home are getting worse and worse with either really angry outbursts, or him being so low about his life and not wanting to carry on...heartbreaking to hear!

    We are pleased that you are managing to work through your own issues with your son. i hope you dont mind me asking, but could i ask what radical changes you found helpful for your son, just wonder whether it was something personal to your family, or whether we could be missing something that could really help him?

    Thank you once again, and my best wishes to you.

Children
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