• Replies 1 reply
  • Subscribers 25 subscribers
  • Views 454 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Nothing after being diagnosed

kellysmithys

Hi my son aged 10 was diagnosed with ASD in the 20th septmeber. We were told that we could go onto a course which would give us information about the diagnosis, and that a report would follow. 

We are now in January and I have phoned to ask why we haven't heard a thing since we've had no report and no appointment for this course. I also don't know whether he will get more appointments of that this is it we've got the diagnosis and we just get on with it. The length of time between appointments is a joke, 

we were advised to apply dor a educational healthcare plan for him but we can't do this until we've got the report. 

I've been told that my sons case worker has been on long term sick and that she didn't put our names forward for the course and that the report hasn't been done, and this is now going to take a further 3-4 weeks.

I just feel so helpless and feel like he has just been forgotten about. Since he has been diagnosed I've noticed that he is becoming really anxious and has bad anxiety he has a huge fear of being told off and this sometimes affects him to the point that he is shaking with fear, do I take this up with my doctor or with chams ? I've been and spoken to his teacher and he said he hasn't seen him that bad in school although he does get anxious if asked a on the spot question, so they do give him some warning before he's asked to answer or do anything.

has anyone else experienced this xx thank you for taking the time to read xx 

Parents

  • Dear Kellysmithys,

    my advice to you and all parents is, you are the only person your child can rely on. You are the only person that cares if he gets the help he needs. Everyone involved with your child is being paid to do a job. You're not. No matter your personality at the moment, you need to learn to be assertive for your child. No one else is going to make sure he gets the help, but you. I became a pain to the school and education authority to gain two of my son's eductional statements. They received help all through till leaving school. Had I fought harder for my first born to receive a statement, he would have received the help he needed and not try and take his own life just before his 16th birthday. I'm 57, my eldest is 30. I'm still racked with guilt over letting the so called professionals tell me there's nothing they can do. My time again? I would have removed him from school. He'd no longer be bullied. Authorities may have actually decided to help him. This is not about me. This is about you young mum's. Your gut is there for a reason. You must listen to it. It's a mothers gut. When you're speaking with teachers, health professionals and there's something you want to say, but feel intimidated, blurt it out!! Don't walk away wishing you'd said something. Say it. You asked if you should see the doctor or chams? See both. Let them see you're on it. Contact the education authorities. Do not accept delays in your son getting the help he needs now. There are rules regulations and laws. You need to search the Web. Be informed, be able to stand up for your son. Good luck x

Reply

  • Dear Kellysmithys,

    my advice to you and all parents is, you are the only person your child can rely on. You are the only person that cares if he gets the help he needs. Everyone involved with your child is being paid to do a job. You're not. No matter your personality at the moment, you need to learn to be assertive for your child. No one else is going to make sure he gets the help, but you. I became a pain to the school and education authority to gain two of my son's eductional statements. They received help all through till leaving school. Had I fought harder for my first born to receive a statement, he would have received the help he needed and not try and take his own life just before his 16th birthday. I'm 57, my eldest is 30. I'm still racked with guilt over letting the so called professionals tell me there's nothing they can do. My time again? I would have removed him from school. He'd no longer be bullied. Authorities may have actually decided to help him. This is not about me. This is about you young mum's. Your gut is there for a reason. You must listen to it. It's a mothers gut. When you're speaking with teachers, health professionals and there's something you want to say, but feel intimidated, blurt it out!! Don't walk away wishing you'd said something. Say it. You asked if you should see the doctor or chams? See both. Let them see you're on it. Contact the education authorities. Do not accept delays in your son getting the help he needs now. There are rules regulations and laws. You need to search the Web. Be informed, be able to stand up for your son. Good luck x

Children
No Data