Confusion

Hi there I've just had a diagnosis of ASD/Aspergers last Wednesday, what I;m confused about is the different degrees of ASD, or HFA, LFA, Aspergers, Autism. The diagnosis was confirmed of ASD or what was known as Aspergers, tho I think that term is to un PC these days.

When the psychiatrist said I've ASD/Aspergers I did ask him "Is that a mild case of it", He said there's no such thing as a mild case you're on the spectrum or you're not. I've been working for an organisation that helps support adults with learning disabilities including Aspergers/Autism (I know the latter two aren't learning disabilities as such), I did mention it to the manager pre diagnosis that I may be on the spectrum , and her reply was "It can't be as bad as (I'll call him Bert) as Bert's autism. So it would appear that she was expecting me to function the same as a non ASD person, ie training the same, and not tailored to my needs. Anyway I don't want to get off the topic, but a number of incidents have happened in the 4 months I've been there that make myself and friends think that the manager is a bully. Just lucky I'm on a 0 hours contract, tho doing work under ESA "Permitted work" rules, so at least I've ESA coming in.

Sorry back on topic I know I'm not like Dustin Hoffman's character in Rain Man, tho I do sometimes struggle with what people are saying, I know in my first job  I did have a work colleague say that I shouldn't take him so seriously, tho sometimes I was unsure if he was joking or he was being serious. I dread meeting strangers incase they perceive me wrong or I make an idiot of myself, or I find the conversation isn't flowing. Again a similar thing with job interviews, I gather everyone ASD or not gets nervous before an interview, but with me it's like the words won't come out. One such question is "Who would you call if you saw a crime in progress" I couldn't think of "police" at the time without prompting, but it's so obvious sitting here. I gather most interviewers must be thinking "Who is this bloody idiot". Tho friends say I can look pretty impressive on paper, as I've shown them some job apps I've made.

I'm not one for rigid structure, I've seen Bert if he's cooking oven chips, line the chips in a straight line, like rows of soldiers on parade, whereas if I was cooking oven chips I'd tip some out onto a baking tray and arrange them flat. Tho sometimes I can be OCD about checking I've locked my door or I'm getting on the right train. I won't use busses after one left me stranded so it's trains or driving for me. I do get irate if people touch or move my stuff, maybe my mum thinks she's helping me, or it seems certain things may be conditional with me doing things her way. I don't mind friends say getting a book out or looking through my music collection. I do try and keep things reasonably clean, and yes I do sometimes get frustrated by mess, tho I do like to think of my desk or filing system as "organised chaos".

I think what maybe threw me is I did read that musician Gary Numan was diagnosed with a mild form of Asperger syndrome, tho the psychiarist said there isn't such a thing as "mild" or "severe". JUst what I struggle with is as real to me as to say Bert's autism is to him, or what Gary struggles with with his Aspergers. BTW if you get the chance to see Gary Numan in concert, go it's well worth it , saw him in Cambridge in 2009. I feel maybe i'm in good company , so many artists, inventors, scientists and musicians/composers with Aspergers.
I don't know wether to think of ASD as being like a paint chart so many different colours and then shades of those colours. Tho I don't know if ASD sounds worse that Aspergers to me how I've understood it in the past is HFA/Aspergers means a person is of above average intelligence, and those with autism seem to be lower on the intelligence scale, or maybe I've misunderstood it.  www.asperger-syndrome.me.uk/people.htm

                             

Parents
  • I guess some things were better in the 70's , Wagon Wheels, Fab Lollies and Curly Wurlies were bigger, and Freddie Mercury was atill alive, 25 th anniversary of his death today, tho I try not to see it as sad as he left us a great musical legacy, and the body is just a shell for the spirit and soul. He was right when he said that he would be a LEGEND!!!! 

    For the 21st Century, I think  attitudes towards disability and mental illness  have changed.  I hate shopping, especially with the silly season approaching, so I prefer to buy online. However there seems to be a nostalgia for the past, in that vinyl record sales have increased, tho vinyl is the best format tho if I buy a new release I usually by the CD as the vinyl is too expensive seeing as I'n on a limited income, tho I do sometimes buy secondhand vinyl (or CDs).      

Reply
  • I guess some things were better in the 70's , Wagon Wheels, Fab Lollies and Curly Wurlies were bigger, and Freddie Mercury was atill alive, 25 th anniversary of his death today, tho I try not to see it as sad as he left us a great musical legacy, and the body is just a shell for the spirit and soul. He was right when he said that he would be a LEGEND!!!! 

    For the 21st Century, I think  attitudes towards disability and mental illness  have changed.  I hate shopping, especially with the silly season approaching, so I prefer to buy online. However there seems to be a nostalgia for the past, in that vinyl record sales have increased, tho vinyl is the best format tho if I buy a new release I usually by the CD as the vinyl is too expensive seeing as I'n on a limited income, tho I do sometimes buy secondhand vinyl (or CDs).      

Children
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