Finding Answers

After months of researching and questioning myself I finally decided to phone and try to arrange a GP appointment to get an assessment for autism. I'm a 20 year old student in my final year at university. For around the past year I've been struggling with depression and I've had anxiety in some form for as long as I can remember. I was told that I couldn't be on the autistic spectrum because I'm at university and I wouldn't be where I was if I was autistic. I don't really understand this and it has made me feel even worse and even more confused. I've been seeing a counceller for my mental health problems and want to bring it up with him but I feel as though I would be wasting his time. I feel lost at the moment and it is seriously affecting my uni work and my relationships with family and friends, who are distancing themselves fro me when I try to talk about the traits of autism I experience. Any help in understanding and coping better would be really apprreciated. I haven't told anyone else I think I am autistic. Should I? Am I just making this up in my head? Do I keep trying to get a diagnosis?

Parents
  • Hi

    Well I just went through assessment at age 42, after a year waiting for it through GP, and came out with a report that basically puts my anxieties down to 'childhood trauma'...They basically noted that because I had eye contact, good non verbal expression, am social, have emotions, very creative, dont have repetitive behaviour interests, and that I cope, I dont meet the criteria.

    I was shocked at this, after hours of discussions explaining my struggles as a child (basically didnt talk to anyone i wasnt close to, always felt differentm and was called weird at school) and in adulthood, particularly with relationships and socially in groups, hypersensitivity and clumsiness. I was also aware that there were aspects they hardly/never touched on which would have a bearing on a diagnosis. They were looking for typical traits as achild and of course im an expert at mimicing social behaviour and my determination and obsession with subjects im interested in have made me successful in work. But it has also caused me intense anxiety and a period of phobia which I also overcame myself. But just because I "cope" thats not to say im not struggling and the destruction its causing...

    I was/am still 99.9% certain of my ASD/Aspergers and there is a clear history of aspergers/bi polar in my family.

    I am really quite angry with the NHS for basically ignoring alot of the points I made in over the assessment and I also feel my mother's contribution may have been detrimental rather than helpful to a diagnosis. Her memory is unreliable and our relationship isnt exactly normal, she is quite manipulative and may well be on the spectrum too. I took a risk asking her to be part of it but I had no one else. My father even more unreliable as he has a mental health condition apart from the fact that im estranged from him.

    I only saw one psychologist, one other sat in on the ADOS test, which I found excrutiatingly stressful, and I cried at the final report which left me feeling helpless without any diagnosis or even reason/validation for my experiences/traits/feelings.

    Anyone else had similar experience? Should I persist with this or is it a waste of time and emotional energy to fight? I emailed the psychologist to say I feel much of what ive said hasnt been taken into account and waiting to hear back.

    :/

Reply
  • Hi

    Well I just went through assessment at age 42, after a year waiting for it through GP, and came out with a report that basically puts my anxieties down to 'childhood trauma'...They basically noted that because I had eye contact, good non verbal expression, am social, have emotions, very creative, dont have repetitive behaviour interests, and that I cope, I dont meet the criteria.

    I was shocked at this, after hours of discussions explaining my struggles as a child (basically didnt talk to anyone i wasnt close to, always felt differentm and was called weird at school) and in adulthood, particularly with relationships and socially in groups, hypersensitivity and clumsiness. I was also aware that there were aspects they hardly/never touched on which would have a bearing on a diagnosis. They were looking for typical traits as achild and of course im an expert at mimicing social behaviour and my determination and obsession with subjects im interested in have made me successful in work. But it has also caused me intense anxiety and a period of phobia which I also overcame myself. But just because I "cope" thats not to say im not struggling and the destruction its causing...

    I was/am still 99.9% certain of my ASD/Aspergers and there is a clear history of aspergers/bi polar in my family.

    I am really quite angry with the NHS for basically ignoring alot of the points I made in over the assessment and I also feel my mother's contribution may have been detrimental rather than helpful to a diagnosis. Her memory is unreliable and our relationship isnt exactly normal, she is quite manipulative and may well be on the spectrum too. I took a risk asking her to be part of it but I had no one else. My father even more unreliable as he has a mental health condition apart from the fact that im estranged from him.

    I only saw one psychologist, one other sat in on the ADOS test, which I found excrutiatingly stressful, and I cried at the final report which left me feeling helpless without any diagnosis or even reason/validation for my experiences/traits/feelings.

    Anyone else had similar experience? Should I persist with this or is it a waste of time and emotional energy to fight? I emailed the psychologist to say I feel much of what ive said hasnt been taken into account and waiting to hear back.

    :/

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