Am I Autistic? Diagnosis?

Hi,

I am a 22 year old male student, who has been researching about autism for the last 4 or 5 months, and am quite sure that I fall on the spectrum. Earlier today I went to my GP to ask about autism and request a referal. He told me to come back with a list of reasons written down so he could assess them and forward them on with the referal.

Below are the reasons I came up with to back my case;

  • Really struggle to maintain eye contact
  • Become tense and stressed when people touch me / vice versa. Haven't hugged my family members in years, normally try and leave a minute early and wave goodbye from the car.
  • Repetitive actions, general snapping my fingers while walking around. (This doesn't happen to often, normally just when I'm bored, it happens without me thinking about it.)
  • Using the same phrases, normally when I can't think of a response to a conversation
  • Can never remember people's birthdays.
  • Never notice any changes to someones appearance. (Quite often they take this personally)
  • I also can't remember things that people say (eg: if a work colleague says they're going to the cinema, I'll give them a blank look the following day when they say they had a good night.)
  • Quite often I will ask somebody to repeat themselves, even though I heard them clearly the first time, it just gives me time to think of a relevant reply.
  • I hate walking through the street. There are so many people, sounds and things to look at, it makes me tense. I tend to just look at the ground.
  • Struggle understanding body language, facial expressions and social cues.
  • Not knowing when it's my time to talk, especially on the phone.
  • Small chit chat is virtually impossible for me.
  • However I can talk for hours about a topic that interests me.
  • Constantly thinking about my body posture. To a point where I will miss everything someone has said because I'm too busy adjusting my position.
  • Being told I'm impolite or keep saying/talking about the same things.
  • Can talk about myself for ages. Normally in conversations most of my responses will begin with 'I'.
  • I enjoy being alone in my room and I avoid social situations (nights out etc...). If I can't avoid it, I will stress a bit in the time leading up.
  • When it comes to arrangements, I plan every little detail in my head prior to the event. (Even to a point where I've been eating the same food because I can plan my route around the supermarket.)
  • Massive obsession with music, maths and technology. Struggle to maintain interest in anything else that doesn't fall under these categories.
  • Strong self-discipline..... or stubbornness
  • May be minor, but I read somewhere that bad handwriting is common?

I should also mention that I have taken various online AQ tests and have scored between 37 - 40 (out of 50) on all of them.

I'm sure there's more but that's all I can think of at the moment.

Am I autistic? or is it possibly something else?

If I am autistic, is there really any benefit in going through a diagnosis? I'm not looking for any help or support, and I don't want to be judged for being labeled (aka job applications etc...)

Also, can I tell people that I am autistic? Even without a diagnosis? Is chatting with yourselves at The National Autistic Society enough to vouch for my condition? or will people shrug off the idea when I say I'm autistic. I like to think I hide it well, and I did once drunkenly tell someone I was concerned about having autism and they didn't believe me.

Sorry for all the questions and thank you for your time

Matt

Parents
  • Hi Matt

    I am at present undiagnosed but have an assessment booked for mid December.

    You share many of the same characteristics as me.  The Baron Cohen score you got certainly indicates that there is a strong possibiility that you may have an ASD. Whether indeed you have an ASD or not will be determined by the diagnostic process.

    Whether you tell others is up to you.  I would think it is unlikely that anyone would suspect you had an ASD unless they already have experience of it themselves. Every person is different.  If others think anything at all they would probably only think you were a bit 'strange'.  If you do tell anyone make sure they understand that autism is a 'spectrum' disorder and covers the whole gamut from severely disabled to those who have great knowledge and great intelligence.  You might want to give some examples such as Chris Packham, Susan Boyle and Anne Hegarty from 'The Chase' who have all been diagnosed.  An ASD is nothing to be ashamed of, and although it manifests itself in many ways, higher functioning ASD is a different way of thinking and can have advantages in many fields in today's society.

    Getting a diagnosis may help to explain a lot of things about your behaviour,  but remember having an ASD is not an illness, it is how you are and there is no 'cure' (and speaking for myself I do not wish to be 'cured').  

    There would be no need to tell a present or future employer unless you wanted to or your condition started causing problems at work  You may think that you will get along all right with not wanting to be labelled at work, but your duties at work may change at some indeterminate point in the future (usually a 'get out' clause saying 'Any other duties commensurate with the role and salary' which covers just about anything).  And when or if that did happen, knowing you had a diagnosis may be of considerable help in preventing anxiety and depression by helping you to get 'reasonable adjustments'.  

    Joining a Trade Union recognised by your employer might be a good idea as it will give you access to legal help if at any time in the future you suffer discrimination as a result of your condition.  Remember an ASD is covered under the disability discrimination act and an employer should make 'reasonable adjustments' to negate any disadvantage you have as a result of your condition.  A Trade Union should help you get these reasonable adjustments.

Reply
  • Hi Matt

    I am at present undiagnosed but have an assessment booked for mid December.

    You share many of the same characteristics as me.  The Baron Cohen score you got certainly indicates that there is a strong possibiility that you may have an ASD. Whether indeed you have an ASD or not will be determined by the diagnostic process.

    Whether you tell others is up to you.  I would think it is unlikely that anyone would suspect you had an ASD unless they already have experience of it themselves. Every person is different.  If others think anything at all they would probably only think you were a bit 'strange'.  If you do tell anyone make sure they understand that autism is a 'spectrum' disorder and covers the whole gamut from severely disabled to those who have great knowledge and great intelligence.  You might want to give some examples such as Chris Packham, Susan Boyle and Anne Hegarty from 'The Chase' who have all been diagnosed.  An ASD is nothing to be ashamed of, and although it manifests itself in many ways, higher functioning ASD is a different way of thinking and can have advantages in many fields in today's society.

    Getting a diagnosis may help to explain a lot of things about your behaviour,  but remember having an ASD is not an illness, it is how you are and there is no 'cure' (and speaking for myself I do not wish to be 'cured').  

    There would be no need to tell a present or future employer unless you wanted to or your condition started causing problems at work  You may think that you will get along all right with not wanting to be labelled at work, but your duties at work may change at some indeterminate point in the future (usually a 'get out' clause saying 'Any other duties commensurate with the role and salary' which covers just about anything).  And when or if that did happen, knowing you had a diagnosis may be of considerable help in preventing anxiety and depression by helping you to get 'reasonable adjustments'.  

    Joining a Trade Union recognised by your employer might be a good idea as it will give you access to legal help if at any time in the future you suffer discrimination as a result of your condition.  Remember an ASD is covered under the disability discrimination act and an employer should make 'reasonable adjustments' to negate any disadvantage you have as a result of your condition.  A Trade Union should help you get these reasonable adjustments.

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