3 year old currently being tested... Am I coming or going???

My little boy is currently witing to be tested for autism... Me and my partner are currently pulling our hair out with little support at all! The preschool get notified of someone coming to visit before we do and the school cant tell us from which department this person is coming because they don't actually know!!! My little boy is 3 and cannot communicate at all. He will just echo us and I have no idea of he actually understands us! We keep bringing this up to many professionals but its almost like they don't understand... They dont offer us help or give us suggestions of what might be affecting him.

We have been pushing for this since he was 1 and I'm heartbroken because my little boy cannot communicate with me, he knows colours and numbers and can point to various parts of his body. But yet nothing else which ends up in meltdowns... Does anyone have any similar experiences? I feel 

Hi I'm new to this so I'm just going to rant and pray that someone, anyone understands.

My little boy is called Blake. He was extended breech, born by c-section and only slept on daddy. He couldn't crawl, but took to walking, could do eye contact but hated the hoover. Prefered to play alone and he only ever said one word nouns when he was meant to be talking properly. We knew something wasnt right but got told 'wait and see.' We were then referred to speech and language at two. (He hasnt seen them for 6 months.)

Blake is now 3. He is happy and oh so smart. He can count up to 20, identify numbers, colours and has mastered nouns and echoing like a pro. But... He cant tell us how his day is, what he did at preschool, what he wants for dinner or christmas. I'm not even sure if he knows what christmas, or dinner is... To be honest, I'm not sure if he can understand what I'm telling him. I've brought this up to many professionals and I get brushed off. Have you had that? SENCO and Cams (sorry bit rusty) are coming to test him but when? God only knows.

Blake has major meltdowns where Mummy (me) isnt allowed to touch him. It's daddy. Daddy this... daddy that. All i get is freaking bedtime and I look around my house, or when Daddy and Blake are interacting and I go 'Where do I fit in all of this?' I'm envious of my own partner
... Hell I'm envious of parents I dont even know who get a response from there child even if its snarky. I am such a terrible person. Or is that normal?

Is it normal for someone with suspected autism to not talk or have major delays? Is it normal to feel so damn isolated? Is it normal for me as a parent to be envious of others? To wish for my child just to be communicative just for an hour? To cry because I have no idea where I went wrong or what the future will be like? I know compared to most people I must have it pretty easy. But right now it doesn't feel easy at all.  I have no support and absolutely no-one to answer these stupid questions. But if anyone out there knows if my son can understand me. How to help him with language. If this language barrier is a certain aspect of autism. Or even of you feel like you are like me. A parent who is on the outside looking in, tredding the waters of the unknown. A kind word or two word really go far.

Em x

Parents
  • Hi,  sending hugs your defo not alone (although can feel it) you will find your way through. there will be other things that will crop up that will be just between you and your son. Not sure if you have but have you been to your GP and asked to be referred to the community paediatrician? Also in my local authority you can self refer to speech and language from age 2, if not ask  your health visitor to refer. You have got to knock on every door possible, early  intervention is key. Senco is the schools special needs coordinator and cahms are child  mental health services such as psychologists. I would still try and get referral before waiting for anyone to come in and get reports. 

    Take care x

Reply
  • Hi,  sending hugs your defo not alone (although can feel it) you will find your way through. there will be other things that will crop up that will be just between you and your son. Not sure if you have but have you been to your GP and asked to be referred to the community paediatrician? Also in my local authority you can self refer to speech and language from age 2, if not ask  your health visitor to refer. You have got to knock on every door possible, early  intervention is key. Senco is the schools special needs coordinator and cahms are child  mental health services such as psychologists. I would still try and get referral before waiting for anyone to come in and get reports. 

    Take care x

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