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3 year old currently being tested... Am I coming or going???

BlakesMummy

My little boy is currently witing to be tested for autism... Me and my partner are currently pulling our hair out with little support at all! The preschool get notified of someone coming to visit before we do and the school cant tell us from which department this person is coming because they don't actually know!!! My little boy is 3 and cannot communicate at all. He will just echo us and I have no idea of he actually understands us! We keep bringing this up to many professionals but its almost like they don't understand... They dont offer us help or give us suggestions of what might be affecting him.

We have been pushing for this since he was 1 and I'm heartbroken because my little boy cannot communicate with me, he knows colours and numbers and can point to various parts of his body. But yet nothing else which ends up in meltdowns... Does anyone have any similar experiences? I feel 

Hi I'm new to this so I'm just going to rant and pray that someone, anyone understands.

My little boy is called Blake. He was extended breech, born by c-section and only slept on daddy. He couldn't crawl, but took to walking, could do eye contact but hated the hoover. Prefered to play alone and he only ever said one word nouns when he was meant to be talking properly. We knew something wasnt right but got told 'wait and see.' We were then referred to speech and language at two. (He hasnt seen them for 6 months.)

Blake is now 3. He is happy and oh so smart. He can count up to 20, identify numbers, colours and has mastered nouns and echoing like a pro. But... He cant tell us how his day is, what he did at preschool, what he wants for dinner or christmas. I'm not even sure if he knows what christmas, or dinner is... To be honest, I'm not sure if he can understand what I'm telling him. I've brought this up to many professionals and I get brushed off. Have you had that? SENCO and Cams (sorry bit rusty) are coming to test him but when? God only knows.

Blake has major meltdowns where Mummy (me) isnt allowed to touch him. It's daddy. Daddy this... daddy that. All i get is freaking bedtime and I look around my house, or when Daddy and Blake are interacting and I go 'Where do I fit in all of this?' I'm envious of my own partner
... Hell I'm envious of parents I dont even know who get a response from there child even if its snarky. I am such a terrible person. Or is that normal?

Is it normal for someone with suspected autism to not talk or have major delays? Is it normal to feel so damn isolated? Is it normal for me as a parent to be envious of others? To wish for my child just to be communicative just for an hour? To cry because I have no idea where I went wrong or what the future will be like? I know compared to most people I must have it pretty easy. But right now it doesn't feel easy at all.  I have no support and absolutely no-one to answer these stupid questions. But if anyone out there knows if my son can understand me. How to help him with language. If this language barrier is a certain aspect of autism. Or even of you feel like you are like me. A parent who is on the outside looking in, tredding the waters of the unknown. A kind word or two word really go far.

Em x

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  • Hi blakesmummy, My daughter was diagnosed with autism when she was 4. she is 6 now. She was born 4 weeks prem. And she only slept on me too. She doesnt speak much at all but is learning. The feeling of being isolated is how my ex wife felt for a while as my daughter still pushes everyone away who wants to give her a cuddle. The echoing he is doing can be normal of some Autistic children but the level at which they do this can vary. As far as diagnosis is concerned, we took our daughter to the G.P and he reffered us to a child developement center and she undertook 6 weeks of assessments for the diagnosis. The communication barrier he has could be his reason for the meltdown as it is frustrating for the child to tell you what they want or some other kind of sensory overload. its trial and error to find out which it is and finding ways to reduce the anxiety. There are various communication aids which may assist you in talking to him like pecs cards. these are picture cards which both of you can understand and aid in communication. But like I said, ur G.P is the best option but some G.P's dont recognise Autism straight away so you may have to bring it to their attention like we did.   

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  • Hi blakesmummy, My daughter was diagnosed with autism when she was 4. she is 6 now. She was born 4 weeks prem. And she only slept on me too. She doesnt speak much at all but is learning. The feeling of being isolated is how my ex wife felt for a while as my daughter still pushes everyone away who wants to give her a cuddle. The echoing he is doing can be normal of some Autistic children but the level at which they do this can vary. As far as diagnosis is concerned, we took our daughter to the G.P and he reffered us to a child developement center and she undertook 6 weeks of assessments for the diagnosis. The communication barrier he has could be his reason for the meltdown as it is frustrating for the child to tell you what they want or some other kind of sensory overload. its trial and error to find out which it is and finding ways to reduce the anxiety. There are various communication aids which may assist you in talking to him like pecs cards. these are picture cards which both of you can understand and aid in communication. But like I said, ur G.P is the best option but some G.P's dont recognise Autism straight away so you may have to bring it to their attention like we did.   

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