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Awaiting appointment

Becky87

Hi there I am new to this site, so just to start I have 2 daughters and my eldest who is 4 is currently waiting to be assessed by the paediatrician. I have thought that she may be on spectrum for the past year and half but kept going hot and cold with the idea, and I am still not sure! She would be highly functioning if she is on the spectrum. She has recently started school and I've been worried anyway but now even more so. My health visitor said not to mention to the school any concerns to see if they picked up on anything but today less than two weeks into starting school there was an incident where she had what I call a meltdown and she lashed out at another child. Apparently the child just came over to the area where she was playing and she lashed out, but I also know my child is very particular and would lash out as she in her head has a plan on how things should be, so then this child maybe coming into her space was too much. I'm not trying to make excuses as she should not have lashed out at the child. My question is do you think I should have a word with the teacher and fill her in. I am so worried at the moment and I'm just so concerned she is misunderstood. A few opinions would be welcomed. And also your thoughts and experiences would be welcomed. As I said we are waiting for an appointment but that could be after Christmas, and I am just concerned they are judging her on maybe something she is unable to control. We at home know roughly how to deal with certain situations that arise.

Parents

  • Hi, please don't apologise, I fully understand how time disappears.

    Thanks for your kind words, I had difficulty making my husband and his mum believe anything was wrong, but there was, and I was proved right in the end, unfortunately none of them found that out.

    I will find those links for you, I was struggling to find them last night and my house is still topsy turvy with loads of stuff in storage from when we moved, so I have no idea where the hard copies are.

    Ratio 1:4 girls : boys are diagnosed.

    Before you see this peadiatrician, make sure you have loads of notes.  I had to work doubly hard as everyone put the behaviour down to emotional stress from aged 3 due to her dad, however I was able to remember loads of things that happened from birth.

    I could never change her nappy, she was off like lightning.  She hated the car, making herself rigid as a board, I had no way of getting her in at all.  She did jigsaws from very early and by three started was board of 100 pieces, we had to get bigger ones, she does 500's on her own now.  She lined things up, didn't play like other children, hated shops and ran off everywhere. (Amongst other things).

    When you go into the meeting, you will forget, trust me I forgot everything.  Write it down so you can let them know.

    You are not a terrible mother, just trying to understand your child to ensure the best care possible.  There is nothing wrong with that.  By recieving a confirmed diagnosis, you are able to offer the best support.  I am learning and trying new techniques everyday to break down yet another meltdown.

    Keep plodding on, it took me two years, but I proved it in the end, we received confirmation of ASD on Aug 31st.  I am now aware of other things like sensory vestibular and PDA which I think my daughter has which are linked to Autism.

    I will let you know as soon as possible about the links.

    Take care,

    CJ 

Reply

  • Hi, please don't apologise, I fully understand how time disappears.

    Thanks for your kind words, I had difficulty making my husband and his mum believe anything was wrong, but there was, and I was proved right in the end, unfortunately none of them found that out.

    I will find those links for you, I was struggling to find them last night and my house is still topsy turvy with loads of stuff in storage from when we moved, so I have no idea where the hard copies are.

    Ratio 1:4 girls : boys are diagnosed.

    Before you see this peadiatrician, make sure you have loads of notes.  I had to work doubly hard as everyone put the behaviour down to emotional stress from aged 3 due to her dad, however I was able to remember loads of things that happened from birth.

    I could never change her nappy, she was off like lightning.  She hated the car, making herself rigid as a board, I had no way of getting her in at all.  She did jigsaws from very early and by three started was board of 100 pieces, we had to get bigger ones, she does 500's on her own now.  She lined things up, didn't play like other children, hated shops and ran off everywhere. (Amongst other things).

    When you go into the meeting, you will forget, trust me I forgot everything.  Write it down so you can let them know.

    You are not a terrible mother, just trying to understand your child to ensure the best care possible.  There is nothing wrong with that.  By recieving a confirmed diagnosis, you are able to offer the best support.  I am learning and trying new techniques everyday to break down yet another meltdown.

    Keep plodding on, it took me two years, but I proved it in the end, we received confirmation of ASD on Aug 31st.  I am now aware of other things like sensory vestibular and PDA which I think my daughter has which are linked to Autism.

    I will let you know as soon as possible about the links.

    Take care,

    CJ 

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