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I'm new to all this!!

rhondas4kids

Hi, My names Rhonda and i've only just registered with the site. I have 4 kids, two boys and two girls. My youngest boy, Oliver, has always had problems, we first noticed at 7 months old. It all started with his eating, this totally consumed us for the first 3 years of his life, there were days I was convinced he was going to die as he hadn't eaten yet again. It was only when he started nursery that we realised there was alot more problems, they said he was functioning at an 18 month old, he was so behind, I was devestated, I couldn't believe I hadn't realised, he had a bit of help at school to catch up and seemed to be doing ok although still struggling a bit with holding a pen as his fine motor skills aren't great. We struggled along with Oliver and his increasingly strange behaviour thinking he'd just grow out of it. We'd already seen a paediatrician over his eating who told us we had to make his food look pretty and that would solve everything, as if! we felt so helpless.

Then one day a couple of months after Oliver had started class 1 his teacher took me to one side and told me she was convinced Oliver was autistic, I'd heard the term but didn't really know what it was. When I got home and reserched it, it was like someone turning a light on, I couldnt believe how much applied to Oliver

He lives in what we call 'Olivers world'

He has obsessive behaviour

his food issues

he takes everything literally, his fine motor skills are terrible, he has no concept of time, doesnt see danger, hes very sensitive to sound

There are other things, the list goes on, we saw a G.P who referred us to a paediatrician, we saw him yesterday he asked us alot of quetions and then said he'll refer us for a speech assesment ( olivers speech is fine apart from taking things litertally) and will see us in 3 months. I asked him what he thought and he did say he had some concerns.
what I was wanting to know was does it sound like I'm being fobbed off or is this normal procedure, we don't know how everything should work.

Olivers nearly 6 by the way. Sorry for the long post. 

Parents

  • hi Rhonda

    i am not an expert either but my 11 yr old son, does have speech problems, he has a stammer i have a similar case to yours where i was pulled to one side by a teacher who suspected autisum. I myself only suspected ADHD and thought she was having a laugh as didnt understand the different types of autisum myself.

    Until we moved to a different area and again the new school pulled me aside and again suspected autisum they referred him for testing but after 1 year of waiting i was getting really frustrated so spoke to my GP again and this time they also referred him for testing he has since seen an Educational Psychologist who told me today yes my son is definately autistic and she believes he has Aspergers. But will have to refer him for more in depth testing to see how far down the scale he is.

    This has been a shock but i know that the testing can take time as my nephew also has Aspergers although very mildly he waited almost 2 years for a full diagnosis. My son is due to start senior school in August so panick is now setting in if he will be given the full testing before he starts.

    The speech therapy will consist of non verbal communication, verbal communication listening etc etc so will cover all aspects of language, this includes his social interaction with others to and will give a better understanding of the concerns you have with your son.

    I hope this helps you

Reply

  • hi Rhonda

    i am not an expert either but my 11 yr old son, does have speech problems, he has a stammer i have a similar case to yours where i was pulled to one side by a teacher who suspected autisum. I myself only suspected ADHD and thought she was having a laugh as didnt understand the different types of autisum myself.

    Until we moved to a different area and again the new school pulled me aside and again suspected autisum they referred him for testing but after 1 year of waiting i was getting really frustrated so spoke to my GP again and this time they also referred him for testing he has since seen an Educational Psychologist who told me today yes my son is definately autistic and she believes he has Aspergers. But will have to refer him for more in depth testing to see how far down the scale he is.

    This has been a shock but i know that the testing can take time as my nephew also has Aspergers although very mildly he waited almost 2 years for a full diagnosis. My son is due to start senior school in August so panick is now setting in if he will be given the full testing before he starts.

    The speech therapy will consist of non verbal communication, verbal communication listening etc etc so will cover all aspects of language, this includes his social interaction with others to and will give a better understanding of the concerns you have with your son.

    I hope this helps you

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