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Such a long time for a diagnosis

kittycath

Hi Im Catherine and mum to Jack who has just turned four. We started our journey early last summer because my son would not self feed and we were referred to a speech and language team, we also had delayed speech and delayed walking. after seeing the speech and language therapist twice she recommended having some development assessments to check where jack was at. We had two sessions over 7 months and after the second session they did recommend a social and communication assessment. Autism sounded like such a scary word but not one I am unfamiliar with as other family members have autism its just that i felt crushed when I heard that. Acceptance has been a big part of it but I am not such what I am accepting when a diagnosis is still 10 months away. i just wish we had been added to the list a year ago and maybe I would be a little clearer on what we are dealing with.

Jack does self feed now but it was all down to him and speech and language were not much help to us really and also some days are a struggle we are getting there.

His language comes on every day but I can see that compared to his peers hes behind in those skills.

I am hoping with Jack starting school and if any needs are identified this might help in the assessment being carried out sooner rather than later. I hope after a diagnosis be it autism or not I hope as a family we can move on and learn about whatever it is we have to deal with every day.

Parents

  • Hello,

    I just wanted to try and help a little (if it does).  I have waited 2 years for a diagnosis for my eight year old, but that isn't really part of the story here. I am communicating in regards to the speech and language.  

    The health officials probably reffered your son to them becuase of the feeding.  My husband has Oesophageal cancer and a freind of ours had throat cancer (not saying your son has cancer, don't be alarmed!), but they both had issues swallowing food post surgery.  They were both referred to speech and language as this can have a profound impact, it is all to do with the swallowing mechanism in the throat etc.

    Your son was probably sent there first to see if they could help him with their techniques.  I understand that everything takes a long time, but in my mind, I would wait two years again any day, to know that at the end of the diagnosis, I have the correct one.  

    Please don't get down hearted.  In my time without a diagnosis, I did research on sites like this to try and understand my daughter better, although I didn't apply many things in case it was wrong to do so.  It really can help to the understanding of the behaviour.  I have also found just reading some of the articles, for me especially the violence at home, really enlightening.  You suddenly realise you are not the only person going through this.

    Hope it helps a little.

    Take care

Reply

  • Hello,

    I just wanted to try and help a little (if it does).  I have waited 2 years for a diagnosis for my eight year old, but that isn't really part of the story here. I am communicating in regards to the speech and language.  

    The health officials probably reffered your son to them becuase of the feeding.  My husband has Oesophageal cancer and a freind of ours had throat cancer (not saying your son has cancer, don't be alarmed!), but they both had issues swallowing food post surgery.  They were both referred to speech and language as this can have a profound impact, it is all to do with the swallowing mechanism in the throat etc.

    Your son was probably sent there first to see if they could help him with their techniques.  I understand that everything takes a long time, but in my mind, I would wait two years again any day, to know that at the end of the diagnosis, I have the correct one.  

    Please don't get down hearted.  In my time without a diagnosis, I did research on sites like this to try and understand my daughter better, although I didn't apply many things in case it was wrong to do so.  It really can help to the understanding of the behaviour.  I have also found just reading some of the articles, for me especially the violence at home, really enlightening.  You suddenly realise you are not the only person going through this.

    Hope it helps a little.

    Take care

Children
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