My son is 12 years old and for years now I have been figthing for a diagnosis. It fel like I was been brushed off and ignored at every turn. But then a chance discussion with a locum G.P whilst she was treating me got a referal up to the hospital.
Even then, some of the staff there were a little off hand with mw and I was left feeling like nobody believed me. That was until I got the appointment for his ADOS assessment. The Clinical Psychiatrist that was doing the test was just so lovely with me. She explained to me everything that would be done, and that as soon as they were doe, she shoud come and tell me what had gone on. That she did. She said to me that with the dignostic symptoms my boy alredy had. that the ADOS need not have been done. She said id was clear that he had Aspergers Syndrome - she did not need the ADOS to tell her that, but that she had to score tha test and get back in touch with. About two weeks later, she did and conformed that he had Aspergers syndrome.
I burst into tears and really sobbed. she was great and gave me a big hug and a lot of reassurance.
But now I feel as though I am swimming through mud. Like nothing is right and nobody can help me. I have a DLA form to filll in but that's all. I have one person saying to ask the CAB, another person is saying there are all sorts of things I can get and a friend of hers even got a laptop to help her boy with his homework..
I feel so confused and upset. I'm tying to hold on and be strong for me boy but I just don't know where to go to get him what he needs. 
