What to do from here if anything.

I have been on here and spoke about my middle son. He was put though for assesment which concluded in April.  He's currently 2 years 8 months old. He's speech is still very difficult to understand he is improving on the fact he's saying more single words coming out and very rarely putting 2 words together. He does babble on alot but none of it is understandable and the babbling is also very new.  He was assessed by speech and language therapy and was said that his speech and development was around 12 month. He was also assessed at the child development centre by a nursery nurse and her report basicly  said because he engaged with her a on his terms once and tried to speak to 1ltitle boy once thathe he's totally fine and his development is around 2 to 2 1/2 years. The fact he freaked out at all sensory play every single time was totally dismissed and all of the photo and video evidence I took to prove my concerns were there was not taken into consideration as they hadn't personally seen it for them selves.  They are discharging him saying that he will be fine once he attends nursery. Now I don't profess to be a professional but when you can't even move because your 2 year old son so obsessed with your feet he's permanently led on them and pinning you to the floor and won't let you go but at the same time refuses to let you touch him at all. When you go out and he can't move past any shop without staring in the windows chanting shoes shoes lights lights every single time and every single shopping trip in his eyes has to be about shoes and clothing with cars on. When people are telling him he's strange because he's so excited he's on the bus he can't stop squealing wheels wheels wheels constantly. He's a well behaved little boy who doesn't actually seem to know how to miss behaves and never has tantrums about not getting his own way he dies have meltdowns once he's reached sensory over load. We can not do more than 1 day of actives without at least a day at home before the next activity otherwise he melts down in the middle of day 2 and won't stop till he literally just falls asleep. He's to start nursery in January and am worried how he's going to manage 5 mornings a week and he's not where near potty training at all it was only last night he was running around with no nappy on waiting for his bath to run and he pooped and didn't even notice. Like I said I don't profess to be an expert but I have aspergers my husband has Autism my eldest has autism so I do have a bit of an idea about things and my warning bells just aren't stopping. Do you think I should go back to my gp tell them everything and see if I can get a second opinion?

  • How frustrating for you to not be listened to. I would definitely think it's worth going back to your GP. If you don't get anywhere with that, I would talk to nursery and explain your concerns before he starts and get them on side (actually, I would do that either way). Then if he has issues as you expect once he starts, they will be ready for them but also they could also be great ally's, as frustrating as it is it may well be that medical professionals will listen to them more than to you.

    If he is autistic (and it sounds likely to me from your description but I'm no expert) then it's likely that his differences will be more pronounced and noticable to others as he gets older and with you their to advocate for him hopefully they will be recognised sooner rather than later.

  • To be honest I am not interested in the diagnosis. I am just interested in getting the right support for him. I can clearly see he struggles constantly more than any of us ever have and I want to make sure that he doesn't go though horrible support just because there's such lack of support because people won't listen. I have watched a child my eldest go though 11 painful years due to incorrect support its only now his first year in high school that the correct support I'd in place and he's doing brilliantly and a totally different person. I can't watch another child suffer. Thank you will look.

  • Former Member
    Former Member

    From your description of him and the fact that autism is in the family I think you can be fairly confident that he has autistic traits but he may not be severely enough affected to require diagnosis. The diagnosis doesn't change who or what he is, it just triggers assistance if assistance is needed.

    It depends what you think can be achieved by getting a diagnosis at this stage rather than waiting for him to start school.

    I think it would be worth discussing with the GP - second opinions can be obtained - have a look at the threads returned by this search community.autism.org.uk/.../"second opinion"