Waiting for Diagnosis

My Grandson had his multidisciplinary assesment yesterday. At the end of it, the main doctor told my Daughter about all the appointmens that were going to be made to finish assesing him and that it should all be finished by the end of July. She also said that, from what they had observed so far, it was leaning towards Autism.  Do you think that they already know and are trying to give my Daughter time to come to terms with it?  Thanks for any help or advice.

  • My Daughter had already come to terms with this possibility. We just thought that  the Doctor may have felt the need to prepare her in some way, if she felt it was going to be the end diagnosis. Obviously until we get that we wont know for certain, we just wondered if this could have been an indication as to what the outcome may be.  

    She is only going through this now because she pushed for it, due to other family members who have children with Autism, that kept pointing out similarities in his behaviour.

    At least if he is diagnosed, he will receive all the help that he needs as early as possible, which is all my Daughter wants. As you state we will also learn how to help him and, you're absolutely right when you say he is still a lovely boy, and nothing will change that.

  • Hmm

    He is still a lovely boy of 30 months ago and Autism will not alter that at all.

    I don't quite see how they know in one so young but that is for those Assessing to decide and what isn't being discussed here.

    Why should your daughter need to work at coming to terms with it. She taken him for the Assessments etc and that alone goes along way to her dealing with her reaction on it here.

    I think if you read a vareity of accounts on here you may find a mixed reaction. It seems the older we are the more we see our diagnosis a positive thing happening to us. Finally someone is understanding what we are about. It the posts parents and their families put that seem to think it is a no go area and devasting news. It really isn't you know. It is very helpful that children can be diagnosed so young because then they can grow up with stratergies in place where as similar to the other two adults here I was only diagnosed two year ago at the age of 45 after never quite being able to do things in life etc. At least your grandson will get all the help he needs, hopefully and live the life he wants to live rather than everyone thinking the worst.

    The autism label is a good lable as people around him will learn how to help him when he needs their help :-)

  • Thank you also. It must be have been a great relief that you now have the diagnosis. I'm hoping my Grandsons one will be as straight forward as it can be, and it's all sorted out as quickly as possible, so that they can start to help him.

  • Thank you so much, it's wonderful to see that it is still possible for people with Autism to achieve things in life. It's such a shame, he's only 30 months old, and such a lovely boy. You automatically assume that it's a very bleak outlook but your post has definitely made me think again.  Thank you x 

  • Yesterday, at the age of 60 and a half, I was finally diagnosed with Asperger Syndrome by the NHS Asperger Team.. but I still have two more appointments to come for them to define precisely the extent it has affected my life, what I can and cannot manage etc.

    As has been said, it is crucial for them to get the assessment right as an incorrect assessment can lead to misunderstandings and upsets later on.  For a younger person, understanding just what their issues are must be able to help them.. I wish I had been diagnosed when young it would have made my terribly confusing life much more easy to cope with.

  • Former Member
    Former Member

    No, they aren't generally as subtle as that. They probably suspect that the process will come out with a diagnosis but they have to go through the whole process.

    An ASD diagnosis is not like a lot of other diagnoses, it is a fairly permanent label that brings with it certain rights that are not given out lightly. A diagnosis generally brings one under the protection of the Equality act so they only give a diagnosis when they are confident that the diagnosis is correct. It is actually difficult to diagnose, autism is often a completely invisible condition that is hard to identify in a person.

    A diagnosis should be good news for someone as it can lead to specific help and considerations. A diagnosis is also not the end of the world! I was diagnosed at 56 after being employed for all my life and having gained 3 degrees at university. Different people may however have other problems such as learning difficulties or epilepsy. Sometimes learning difficulties can arise as a result of autism and sometimes learning difficulties are just present alongside autism and sometimes it is hard to tell.