• Replies 28 replies
  • Subscribers 25 subscribers
  • Views 8772 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Not Autisitic enough

Al 1

Hi Everyone

i have just been for an assessment at the Nhs centre in Sheffield. I comcluded a session of 2 hours of assessment mainly verbally asking me questions and at the end of it I was informed that had I been assessed as a child then I would of got an ADOs test. It was explained that whilst I have many Autistic traits then this is not enough to warrant an ADOS test, which feels a bit like telling someone with 1 leg that can't be provided with a wheelchair unless they have no legs.

i went because I had an idea after my son was diagnosed and I also think my dad has had it for years, given I now know quite a lot about the condition. I racked my brain back to my childhood and now present day and I am clearly Autistic, but clearly the view is that if you are not Autistic enough then basically you can't get the same support Which is very fustrating for me. I was further told that basically I had adapted through learnt behaviour and that I found strategies and routines in my life that suit my situation and by default I have indirectly protected myself in some ways. When I basically explainer at the end  of how I could be defined with Aufistic traits, yet effectively not be Autistic enough it was positioned with me that 'The reason I taken this literal view was based on my Austism'.

So basically, I am just sharing this with this network to look for other people's experience where they may feel let down by the process to gain an ADOS test and the relevant support.

Thanks for listening and appreciate any feedback.

Al

Parents
  • Former Member
    Former Member

    I am glad that Atypical has an outcome that she can work with. Neither of the possible outcomes is a bed of roses but if it gives one insight and more acceptance of who one is then there are positives to be found.

    lostmyway said:

    I'm not too impressed by the plethora of self-help books out nowadays promising this and that because they don't usually work and really one needs the help of a trained professional within a structured regimen to stand a reasonable chance of real progress.

    I always despised self-help books but perhaps one of the reasons for that is that they are mostly not written by and for the autistic person. Recently I have found that I can pick and choose the advice and think about how the particular advice could be exploited, or not, by someone with autism.

Reply
  • Former Member
    Former Member

    I am glad that Atypical has an outcome that she can work with. Neither of the possible outcomes is a bed of roses but if it gives one insight and more acceptance of who one is then there are positives to be found.

    lostmyway said:

    I'm not too impressed by the plethora of self-help books out nowadays promising this and that because they don't usually work and really one needs the help of a trained professional within a structured regimen to stand a reasonable chance of real progress.

    I always despised self-help books but perhaps one of the reasons for that is that they are mostly not written by and for the autistic person. Recently I have found that I can pick and choose the advice and think about how the particular advice could be exploited, or not, by someone with autism.

Children
No Data