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Not Autisitic enough

Al 1

Hi Everyone

i have just been for an assessment at the Nhs centre in Sheffield. I comcluded a session of 2 hours of assessment mainly verbally asking me questions and at the end of it I was informed that had I been assessed as a child then I would of got an ADOs test. It was explained that whilst I have many Autistic traits then this is not enough to warrant an ADOS test, which feels a bit like telling someone with 1 leg that can't be provided with a wheelchair unless they have no legs.

i went because I had an idea after my son was diagnosed and I also think my dad has had it for years, given I now know quite a lot about the condition. I racked my brain back to my childhood and now present day and I am clearly Autistic, but clearly the view is that if you are not Autistic enough then basically you can't get the same support Which is very fustrating for me. I was further told that basically I had adapted through learnt behaviour and that I found strategies and routines in my life that suit my situation and by default I have indirectly protected myself in some ways. When I basically explainer at the end  of how I could be defined with Aufistic traits, yet effectively not be Autistic enough it was positioned with me that 'The reason I taken this literal view was based on my Austism'.

So basically, I am just sharing this with this network to look for other people's experience where they may feel let down by the process to gain an ADOS test and the relevant support.

Thanks for listening and appreciate any feedback.

Al

Parents

  • Autistic traits, are not in and of themselves solely the property of Autistic people.. they are often extreme examples of common traits.  To that extent, it is possible to have some Autistic traits, but they might not have an overwhelming affect on your life.  

    To have found ways of managing or coping with your difficulties might suggest that they are not overwhelming you.  In saying that, I mean no disrespect nor do I seek to minimise how much they can affect you, just that for me, only a total avoidance of situtions works, I can't "manage" a situation that I am incapable of understanding.

    Having myself only just been formally diagnosed (yesterday) with Asperger Syndrome at the age of 60, there are so many social situations that I have no ability, even at my age, of coping with without sever anxiety and running away.

    In your situation, I would ask my doctor to refer you to a psychologist, and ask that psychologist, as I did, to talk you through your life and how things affect you.  After 5 sessions my step 4 psychologist gave her opinion as Autism, and asked for an assessment for me..

    It's always worth persuing something if you feel in your heart that it will help you understand yourself better. It took me 20 years of psychiatric "help" before I got an answer to my problems, so don't give up.

Reply

  • Autistic traits, are not in and of themselves solely the property of Autistic people.. they are often extreme examples of common traits.  To that extent, it is possible to have some Autistic traits, but they might not have an overwhelming affect on your life.  

    To have found ways of managing or coping with your difficulties might suggest that they are not overwhelming you.  In saying that, I mean no disrespect nor do I seek to minimise how much they can affect you, just that for me, only a total avoidance of situtions works, I can't "manage" a situation that I am incapable of understanding.

    Having myself only just been formally diagnosed (yesterday) with Asperger Syndrome at the age of 60, there are so many social situations that I have no ability, even at my age, of coping with without sever anxiety and running away.

    In your situation, I would ask my doctor to refer you to a psychologist, and ask that psychologist, as I did, to talk you through your life and how things affect you.  After 5 sessions my step 4 psychologist gave her opinion as Autism, and asked for an assessment for me..

    It's always worth persuing something if you feel in your heart that it will help you understand yourself better. It took me 20 years of psychiatric "help" before I got an answer to my problems, so don't give up.

Children
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