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Not Autisitic enough

Al 1

Hi Everyone

i have just been for an assessment at the Nhs centre in Sheffield. I comcluded a session of 2 hours of assessment mainly verbally asking me questions and at the end of it I was informed that had I been assessed as a child then I would of got an ADOs test. It was explained that whilst I have many Autistic traits then this is not enough to warrant an ADOS test, which feels a bit like telling someone with 1 leg that can't be provided with a wheelchair unless they have no legs.

i went because I had an idea after my son was diagnosed and I also think my dad has had it for years, given I now know quite a lot about the condition. I racked my brain back to my childhood and now present day and I am clearly Autistic, but clearly the view is that if you are not Autistic enough then basically you can't get the same support Which is very fustrating for me. I was further told that basically I had adapted through learnt behaviour and that I found strategies and routines in my life that suit my situation and by default I have indirectly protected myself in some ways. When I basically explainer at the end  of how I could be defined with Aufistic traits, yet effectively not be Autistic enough it was positioned with me that 'The reason I taken this literal view was based on my Austism'.

So basically, I am just sharing this with this network to look for other people's experience where they may feel let down by the process to gain an ADOS test and the relevant support.

Thanks for listening and appreciate any feedback.

Al

Parents

  • Thanks for the feedback guys.

    yeah my situation is not straight forward either and similar to both of you really, however with this in mind there was still no offer of an actual diagnosis.

    I take your point in what benefit that would be right now given I have adjusted my life in many ways, have a job, good social life, but the thing is that it doesn't change the way you are or think as life ticks its way forward. I struggle with clashes in communication, an very literal with people who upset me and can't stand dishonest people who don't follow the basic rules in life. I think these things probably wouldn't bother someone who hasn't Autism too much, but they do with me and then that has an adverse knock on effect with your mental well being and those around you.

    i think for me the assessment doesn't go far enough by just asking questions, as the assessment should come from different angles of practical, problem solving and various angles that would provide a wider view of the ongoing difficulties faced by each person.

    again, how someone can be deemed with Austistic traits, but then have the door closed on them with an ADOS test is a truly sad reflection of this country really!

Reply

  • Thanks for the feedback guys.

    yeah my situation is not straight forward either and similar to both of you really, however with this in mind there was still no offer of an actual diagnosis.

    I take your point in what benefit that would be right now given I have adjusted my life in many ways, have a job, good social life, but the thing is that it doesn't change the way you are or think as life ticks its way forward. I struggle with clashes in communication, an very literal with people who upset me and can't stand dishonest people who don't follow the basic rules in life. I think these things probably wouldn't bother someone who hasn't Autism too much, but they do with me and then that has an adverse knock on effect with your mental well being and those around you.

    i think for me the assessment doesn't go far enough by just asking questions, as the assessment should come from different angles of practical, problem solving and various angles that would provide a wider view of the ongoing difficulties faced by each person.

    again, how someone can be deemed with Austistic traits, but then have the door closed on them with an ADOS test is a truly sad reflection of this country really!

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