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Menstruation

Mumofour

Hi, I'm new on here, so not completely sure how these forums work but here goes.... I have twin girls who are 12 and recently started their periods, within 2 weeks of each other. They are both on the more severe end of the spectrum, and one has very little speech and functions at about age 5/6.

I thought we were handling the periods really well, much better than I expected but this time round she has started pooing herself instead of going to the toilet. I'm guessing it is maybe because she is wearing a pad she thinks it's a nappy (although she stopped wearing them about 5 years ago).  has anyone else heard of this problem?

Also, has anyone with girls on the spectrum decided to go ahead and put them on the mini pill? I have read about it as an option if they are not coping, but my gp is not interested in helping, there is no school nurse (budget cuts) and I really don't know where to turn. 

Thankyou in advance

Parents

  • My daughter is now 16 and also at the lower functioning end of the spectrum. I must admit that I dreaded her starting her periods and we did have some problems but after 4 years she now copes much better with the process. The contraceptive Pill really helps my daughter (& helps me manage the process) as we know exactly when she will be 'on', how long the 'period' will last and it is lighter than a 'normal' period. Some Parents keep their daughters on the Pill without a break but after teaching my daughter with visual timetables, how to manage her needs each month, I didn't want her to lose this skill.(especially as she might need to come off the Pill possbily later in life)

    I did a cutting and sticking magazine picture exercise with my daughter to help her understand the difference between women and baby/toddlers. When she started her periods at the age of 12 she had only been out of night time nappies for around a year and I was concerned she would see the pad like a nappy. There are some good books around now to help with personal care issues, I have found: Taking Care of Myself by Mary Wrobel, really useful.

    Can your daughter's school do a pictorial social story for your daughter about doing a Poo down the toilet and not in the pad? Although my daughter has very poor understanding levels, I find pictorial social stories really helpful with managing her behaviours.

    Hope this helps

Reply

  • My daughter is now 16 and also at the lower functioning end of the spectrum. I must admit that I dreaded her starting her periods and we did have some problems but after 4 years she now copes much better with the process. The contraceptive Pill really helps my daughter (& helps me manage the process) as we know exactly when she will be 'on', how long the 'period' will last and it is lighter than a 'normal' period. Some Parents keep their daughters on the Pill without a break but after teaching my daughter with visual timetables, how to manage her needs each month, I didn't want her to lose this skill.(especially as she might need to come off the Pill possbily later in life)

    I did a cutting and sticking magazine picture exercise with my daughter to help her understand the difference between women and baby/toddlers. When she started her periods at the age of 12 she had only been out of night time nappies for around a year and I was concerned she would see the pad like a nappy. There are some good books around now to help with personal care issues, I have found: Taking Care of Myself by Mary Wrobel, really useful.

    Can your daughter's school do a pictorial social story for your daughter about doing a Poo down the toilet and not in the pad? Although my daughter has very poor understanding levels, I find pictorial social stories really helpful with managing her behaviours.

    Hope this helps

Children
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