A&E Experiences

We regularly have to visit doctors with our son who has autism and also need to visit A&E often. Our experience of A&E has mostly been negative with even the better visits, where we encounter kindness, being marred by ignorance, lack of empathy or long waiting times In inappropriate surroundings. Do many people have this experience? I would be intrested to know what kinds of experiences people have.

I have also started a petition to try to start change in this area. If you have time could you please sign this and share it with your friends?

www.change.org/.../shona-robison-improve-nhs-a-e-care-for-people-with-autism

Many thanks.

Parents
  • I'm a big fat hairy medical phobe, so you can imagine I empathise with that one.

    You might try a medical passport which you could hand over in reception.  I haven't had to put mine into action yet but will if I have to go to A&E.  The waiting room is very triggering for me on all sorts of levels, for instance.  If the receptionist just put me in a broom or linen cupboard to wait that would be fine, just so long as I'm not in the waiting room.  But sadly, most people don't understand the issues over little things.

    I'm beginning to think I'll have to spend my retirement donning my old trainer's hat and offering free training to general medical staff.

Reply
  • I'm a big fat hairy medical phobe, so you can imagine I empathise with that one.

    You might try a medical passport which you could hand over in reception.  I haven't had to put mine into action yet but will if I have to go to A&E.  The waiting room is very triggering for me on all sorts of levels, for instance.  If the receptionist just put me in a broom or linen cupboard to wait that would be fine, just so long as I'm not in the waiting room.  But sadly, most people don't understand the issues over little things.

    I'm beginning to think I'll have to spend my retirement donning my old trainer's hat and offering free training to general medical staff.

Children
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