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A&E Experiences

awetismblog

We regularly have to visit doctors with our son who has autism and also need to visit A&E often. Our experience of A&E has mostly been negative with even the better visits, where we encounter kindness, being marred by ignorance, lack of empathy or long waiting times In inappropriate surroundings. Do many people have this experience? I would be intrested to know what kinds of experiences people have.

I have also started a petition to try to start change in this area. If you have time could you please sign this and share it with your friends?

www.change.org/.../shona-robison-improve-nhs-a-e-care-for-people-with-autism

Many thanks.

Parents

  • Yep I had this problem although I am the one who is Autistic. After 3 hours in a cramped and packed waing room with chatter and bleeping phones I finally got to see a doctor who was also stressed out. He was kind and thorough but when I told him I was Autistic he dismissed it as I am still waiting fir a formal diagnosis.( 2 year waiting  list.) In the past I would have masked and done a good act of appearing "normal". This time I let the mask slip. Big mistake. He seemed to take my manner as confusion due to my age. I now have an appointment with the geriatric clinic. Moral is that even professionals who should understand, don't.  

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  • Yep I had this problem although I am the one who is Autistic. After 3 hours in a cramped and packed waing room with chatter and bleeping phones I finally got to see a doctor who was also stressed out. He was kind and thorough but when I told him I was Autistic he dismissed it as I am still waiting fir a formal diagnosis.( 2 year waiting  list.) In the past I would have masked and done a good act of appearing "normal". This time I let the mask slip. Big mistake. He seemed to take my manner as confusion due to my age. I now have an appointment with the geriatric clinic. Moral is that even professionals who should understand, don't.  

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