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What on earth is 'Genetic investigation'???

Finnian

Hello, my 7 year old boy is currently going through the assesment stages. I recieved a letter that may as well have been written in German!! I don't understand the terms used., anyone know what these are? 'ASC pathway'? and 'CAF'? Also, they are asking for an appointment with him for 'Genetic investigation'?

not even understanding the letters they send has left me feeling really frustrated...How can I make the right decision for my son if I have no idea what they are on about??!!!! Thankyou everyone

 

Emma.

Parents

  • Hi,

    I may be total wrong but I remember when my son who is now 17, being genetical tested, by a blood test and taking a family history from me to rule out and genetic reasons for my sons conditions. His blood test were sent to london (i lived in east sussex at the time) for specialist screening. So it may be something similar.

    I think it is shocking that you recieved a letter like that. Do you get on well with your gp? I would put n appointment on to discuss the letter with them see if they can help you. If they cant they should have direct numbers to contact the people who have. Its often easier to understand things fce to face. which is why I suggest an appointment.

    Good luck and let us know what it all means!!

    sam

    x

Reply

  • Hi,

    I may be total wrong but I remember when my son who is now 17, being genetical tested, by a blood test and taking a family history from me to rule out and genetic reasons for my sons conditions. His blood test were sent to london (i lived in east sussex at the time) for specialist screening. So it may be something similar.

    I think it is shocking that you recieved a letter like that. Do you get on well with your gp? I would put n appointment on to discuss the letter with them see if they can help you. If they cant they should have direct numbers to contact the people who have. Its often easier to understand things fce to face. which is why I suggest an appointment.

    Good luck and let us know what it all means!!

    sam

    x

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