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When AS is not "significant impairment"

longman

I would like to introduce a thread that deals with AS/ASD with lesser impairment - when those diagnosed do not strictly meet the requirement of "significant impairment". These are the people with ASD/AS who are able to manage their lives or who have not been successful in claiming support or whose access to support is being challenged under the new constraints.

From other dialogue here, there is clearly some concern amongst those with significant impairment that too many people are being diagnosed who are perceived as not fitting the "significant impairment" criteria.  That includes people who have improved/ "been cured" since original diagnosis.

Some of this may otherwise belong under "Living on the Spectrum", but I feel there are a lot of concerns under diagnosis and assessment that need addressing where people are managing to cope with impairment and have some degree of fulfilment. This includes socialising, relationships, travel, work etc. However the reason I bring this up is that there are maybe significant issues for those who do not meet the "significantly impoaired" criteria that differ from the latter. I don'r feel these get a fair hearing.

If the moderators want to move this to "Living on the Spectrum" fair enough, but can you please do it so that there is an opportunity to discuss issues affecting those with "lesser impairment"

Parents

  • Unfortunately this resentment of adult diagnosis persists in many guises, and often emmanates from parents groups, who are very energetic on behalf of members' children with AS, but many of them lack strategies for those children when older. In some you cannot usually be an adult member with aspergers unless your parents are members.

    I think it is most unfortunate as we need to discover how to improve the chances of adults on the spectrum to lead fufilling lives. The experiences of those not diagnosed until adulthood may be valuable in understanding longer term outcomes.

    Childhood diagnosis, when support is successfully accessed, supposedly cushions the child from at least some of the pressures those not diagnosed had to face. However we now have insufficient reference data for unsupported individuals, apart from in books by people diagnosed late.

    To understand how to help all adults on the spectrum cannot surely be achieved without including the experiences of those late diagnosed.

Reply

  • Unfortunately this resentment of adult diagnosis persists in many guises, and often emmanates from parents groups, who are very energetic on behalf of members' children with AS, but many of them lack strategies for those children when older. In some you cannot usually be an adult member with aspergers unless your parents are members.

    I think it is most unfortunate as we need to discover how to improve the chances of adults on the spectrum to lead fufilling lives. The experiences of those not diagnosed until adulthood may be valuable in understanding longer term outcomes.

    Childhood diagnosis, when support is successfully accessed, supposedly cushions the child from at least some of the pressures those not diagnosed had to face. However we now have insufficient reference data for unsupported individuals, apart from in books by people diagnosed late.

    To understand how to help all adults on the spectrum cannot surely be achieved without including the experiences of those late diagnosed.

Children
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