• Replies 30 replies
  • Subscribers 25 subscribers
  • Views 4787 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Need some help and guidance with NOT being diagnosed with Autism.

4390evans

Hi everyone, 

Im in a bit of a panic here so I am hoping someone can help me.

Ive got a child of 2 who at 6 months old went through major heart surgery, she was a normal smiley happy baby. When she came round from surgery she was still very groggy and when I went to touch her she recoiled back in horror and there was something amiss for a while after that. I put it down to her being traumatised from the surgery and the pain afterwards. We had to hold her back doing alot of things a normal 6 month old would be doing at that age like rolling, sitting up etc.... I think she didnt trust me for a long time afterwards and its took us a long time to build that bond again. I have always known she has been a bit behind and I do blame the op, but she has excelled at everything like walking, crawling, getting up stairs eating etc the only thing that is a bit off is her eye contact and talking. She is nearly 3 and can say 5 words. She knows what she wants and will take you to it but she is just refusing to say most things. Yet she will make sound like words. Her eye contact is getting better. She is in daycare for 4 hours a day and has lashed out twice bit and pulled hair. She understands what you say to her, mostly. She attempts to get heself dressed. 

So the daycare tried to say she had trouble eating (rolling stuff round in her mouth, or holding food in there before swallowing) we had someone look at that as we have never experienced this problem with her and the peditrician agreed with us there was no problem at all.

We were recomended to go see another peditrician at the hospital we went to the appointment the other day and at this 20-30 min appointement he is wanting to get her looked at for Autisim which I think is ludicrous! All because she didnt give him eye contact?! Over the next 3 months he will be sending people out to assess her and report back to him. 

I felt he wasnt listening to me when I was saying that she was just delayed and I needed help for that. He was more concentrated on Autisim. 

I need some help to fight this as I dont know where to start, I know my child has not got Autisim, she is slow but does not have Autisim. Im going to fight this all the way but in the mean time I need to know what help I can get and who from for a child who is delayed. The peditrician said he cant offer me any help till he gives a diagnosis, is this right?

So sorry for the long post guys xx

Parents
  • Former Member
    Former Member

    Hi Blu74,

    You might be right about your child but you might be wrong.

    Your 11 year experience is perhaps of one child? A teacher's experience is of many children and they can often identify a child that is struggling and they might be able to identify why a child is truggling. They have experience that you don't have. They are not infallible but neither am I and neither are you.

    A diagnosis of autism is not a terrible thing, it can be the gateway to progress that a child or adult cannot make without the recognition that they are different and that there are effective ways of dealing with it.

    The behaviour of a person with autism can vary massively according to the environment and may reflect a reaction to a key individual - a child may be well behaved with one teacher but totally out of control with another, normal at school or out of control at home or vice versa. The autism is constant but the behaviour can vary markedly.

    Your post reads as a very angry and bitter tirade that indicates distress, a closed mind and a belief that autism is terrible. I have autism, it annoys me but it is not a catastrophe for me.

Reply
  • Former Member
    Former Member

    Hi Blu74,

    You might be right about your child but you might be wrong.

    Your 11 year experience is perhaps of one child? A teacher's experience is of many children and they can often identify a child that is struggling and they might be able to identify why a child is truggling. They have experience that you don't have. They are not infallible but neither am I and neither are you.

    A diagnosis of autism is not a terrible thing, it can be the gateway to progress that a child or adult cannot make without the recognition that they are different and that there are effective ways of dealing with it.

    The behaviour of a person with autism can vary massively according to the environment and may reflect a reaction to a key individual - a child may be well behaved with one teacher but totally out of control with another, normal at school or out of control at home or vice versa. The autism is constant but the behaviour can vary markedly.

    Your post reads as a very angry and bitter tirade that indicates distress, a closed mind and a belief that autism is terrible. I have autism, it annoys me but it is not a catastrophe for me.

Children
No Data