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Need some help and guidance with NOT being diagnosed with Autism.

4390evans

Hi everyone, 

Im in a bit of a panic here so I am hoping someone can help me.

Ive got a child of 2 who at 6 months old went through major heart surgery, she was a normal smiley happy baby. When she came round from surgery she was still very groggy and when I went to touch her she recoiled back in horror and there was something amiss for a while after that. I put it down to her being traumatised from the surgery and the pain afterwards. We had to hold her back doing alot of things a normal 6 month old would be doing at that age like rolling, sitting up etc.... I think she didnt trust me for a long time afterwards and its took us a long time to build that bond again. I have always known she has been a bit behind and I do blame the op, but she has excelled at everything like walking, crawling, getting up stairs eating etc the only thing that is a bit off is her eye contact and talking. She is nearly 3 and can say 5 words. She knows what she wants and will take you to it but she is just refusing to say most things. Yet she will make sound like words. Her eye contact is getting better. She is in daycare for 4 hours a day and has lashed out twice bit and pulled hair. She understands what you say to her, mostly. She attempts to get heself dressed. 

So the daycare tried to say she had trouble eating (rolling stuff round in her mouth, or holding food in there before swallowing) we had someone look at that as we have never experienced this problem with her and the peditrician agreed with us there was no problem at all.

We were recomended to go see another peditrician at the hospital we went to the appointment the other day and at this 20-30 min appointement he is wanting to get her looked at for Autisim which I think is ludicrous! All because she didnt give him eye contact?! Over the next 3 months he will be sending people out to assess her and report back to him. 

I felt he wasnt listening to me when I was saying that she was just delayed and I needed help for that. He was more concentrated on Autisim. 

I need some help to fight this as I dont know where to start, I know my child has not got Autisim, she is slow but does not have Autisim. Im going to fight this all the way but in the mean time I need to know what help I can get and who from for a child who is delayed. The peditrician said he cant offer me any help till he gives a diagnosis, is this right?

So sorry for the long post guys xx

Parents

  • Hi 4390evans,                                                                                                                                                                            

    To prevent this discussion from being too recursive, and as I think that it is becoming removed from the topic at hand; here is a simplified version of what I suspect your original question is and a simplified response:

    Question:

    Can I change therapists or psychologists if I do not feel comfortable with them or if I feel they are too eager to disregard my opinions, prescribe medication, generate diagnosis without sufficient explanation, do not feel that they are providing adequate service or if I do not feel comfortable with their manner?

    Answer:

    Yes. It is considered good practice within the industry to allow patients to change therapist, psychologist and/or psychiatrist if at any stage they do not feel comfortable with any of those items.

    To avoid any unnecessary stress or confrontation, your GP can help find another psychologist to restart analysis, therapist to restart therapy or specialist to restart analysis/treatment in this specialism.

     

    Obviously, as your daughter is far too young to make her own decisions on the matter, you, as her guardian, can make any such requests. Please note that all notes taken throughout these assessments/treatments will be made available to new psychologists/psychiatrists/therapists for review, but they are obligated to take a pragmatic view of the situation at hand. Your GP is also required to maintain a record of such diagnoses.

    Additionally, autism may not necessarily be what you may think it is, and I suggest that you complete further research on the matter to better familiarise yourself with both what it is and what this would in reality entail. Note that you will need to, if you have not already, consult the specialist on quite which area of the ASD spectrum he believes your daughter is and so research accordingly (during your research, I suggest you disregard Kanner autism and any papers, where read in isolation, before 1994. Polyvagal theory is more a discussion on cause and effect but would also be worth reading, especially as it is the current favoured theory on potential physical causes of conditions such as Autism).

    Also please understand that many people on these forums, including myself, are trying to understand their own condition through the experience of others. As such, an apparent disregard or affront this condition may be considered offensive (although I do not believe this was your intent).

Reply

  • Hi 4390evans,                                                                                                                                                                            

    To prevent this discussion from being too recursive, and as I think that it is becoming removed from the topic at hand; here is a simplified version of what I suspect your original question is and a simplified response:

    Question:

    Can I change therapists or psychologists if I do not feel comfortable with them or if I feel they are too eager to disregard my opinions, prescribe medication, generate diagnosis without sufficient explanation, do not feel that they are providing adequate service or if I do not feel comfortable with their manner?

    Answer:

    Yes. It is considered good practice within the industry to allow patients to change therapist, psychologist and/or psychiatrist if at any stage they do not feel comfortable with any of those items.

    To avoid any unnecessary stress or confrontation, your GP can help find another psychologist to restart analysis, therapist to restart therapy or specialist to restart analysis/treatment in this specialism.

     

    Obviously, as your daughter is far too young to make her own decisions on the matter, you, as her guardian, can make any such requests. Please note that all notes taken throughout these assessments/treatments will be made available to new psychologists/psychiatrists/therapists for review, but they are obligated to take a pragmatic view of the situation at hand. Your GP is also required to maintain a record of such diagnoses.

    Additionally, autism may not necessarily be what you may think it is, and I suggest that you complete further research on the matter to better familiarise yourself with both what it is and what this would in reality entail. Note that you will need to, if you have not already, consult the specialist on quite which area of the ASD spectrum he believes your daughter is and so research accordingly (during your research, I suggest you disregard Kanner autism and any papers, where read in isolation, before 1994. Polyvagal theory is more a discussion on cause and effect but would also be worth reading, especially as it is the current favoured theory on potential physical causes of conditions such as Autism).

    Also please understand that many people on these forums, including myself, are trying to understand their own condition through the experience of others. As such, an apparent disregard or affront this condition may be considered offensive (although I do not believe this was your intent).

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