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Need some help and guidance with NOT being diagnosed with Autism.

4390evans

Hi everyone, 

Im in a bit of a panic here so I am hoping someone can help me.

Ive got a child of 2 who at 6 months old went through major heart surgery, she was a normal smiley happy baby. When she came round from surgery she was still very groggy and when I went to touch her she recoiled back in horror and there was something amiss for a while after that. I put it down to her being traumatised from the surgery and the pain afterwards. We had to hold her back doing alot of things a normal 6 month old would be doing at that age like rolling, sitting up etc.... I think she didnt trust me for a long time afterwards and its took us a long time to build that bond again. I have always known she has been a bit behind and I do blame the op, but she has excelled at everything like walking, crawling, getting up stairs eating etc the only thing that is a bit off is her eye contact and talking. She is nearly 3 and can say 5 words. She knows what she wants and will take you to it but she is just refusing to say most things. Yet she will make sound like words. Her eye contact is getting better. She is in daycare for 4 hours a day and has lashed out twice bit and pulled hair. She understands what you say to her, mostly. She attempts to get heself dressed. 

So the daycare tried to say she had trouble eating (rolling stuff round in her mouth, or holding food in there before swallowing) we had someone look at that as we have never experienced this problem with her and the peditrician agreed with us there was no problem at all.

We were recomended to go see another peditrician at the hospital we went to the appointment the other day and at this 20-30 min appointement he is wanting to get her looked at for Autisim which I think is ludicrous! All because she didnt give him eye contact?! Over the next 3 months he will be sending people out to assess her and report back to him. 

I felt he wasnt listening to me when I was saying that she was just delayed and I needed help for that. He was more concentrated on Autisim. 

I need some help to fight this as I dont know where to start, I know my child has not got Autisim, she is slow but does not have Autisim. Im going to fight this all the way but in the mean time I need to know what help I can get and who from for a child who is delayed. The peditrician said he cant offer me any help till he gives a diagnosis, is this right?

So sorry for the long post guys xx

Parents

  • Pentadactyl said:

    Additionally, I am unsure as to the negative impact of the proposed paediatric services on a pre-school child. Wouldn’t this be beneficial? Especially if she is a little ‘slow’ I would hope that the environment provided in this centre would be significantly more controlled (and so far less intimidating) than a general day-care centre would be to any child.  Would there be any better services present at the pediatric centre, which would allow her some time apart from the potentially excessive stimulus presented by her current day care?

    Please forgive my ignorance here, but what negative implications would a formal diagnosis have? Please also discuss with either your GP and/or the doctor who diagnosed your daughter how often she would be re-assessed following diagnosis (as you rightly point out, she is only approaching three, and all children, autistic or not, will develop at different rates).

    I totally agree that she needs some type of help, but what the pediatrician said was that he can not give her any help unless she is diagnosed with something and Autism seemed to be at the top of his list. 

    I would take any help anyone would give me for my child but I am not having her diagnosed with something when she is only 2. I have a friend whith a child who didnt speak till he was 4. So everyone learns and does things at different times. My eldest child was singing songs when he was 13 months old and my second child wasnt so its just differences in childeren and I dont understand how a trained doctor doesnt think of this.

    [Removed by Mod] has a key worker who has one to one time with her and teaching makaton, using picture signs with words etc and I and due to start doing the same at home.

    [Removed by Mod] is not intimidated by anything, she has no fear of people at all and will play along side or with them, she loves and has thrived at daycare since starting a year ago.

    (Hi 4390evans, I've removed your daughter's name to protect her privacy, Sofie Mod).

Reply

  • Pentadactyl said:

    Additionally, I am unsure as to the negative impact of the proposed paediatric services on a pre-school child. Wouldn’t this be beneficial? Especially if she is a little ‘slow’ I would hope that the environment provided in this centre would be significantly more controlled (and so far less intimidating) than a general day-care centre would be to any child.  Would there be any better services present at the pediatric centre, which would allow her some time apart from the potentially excessive stimulus presented by her current day care?

    Please forgive my ignorance here, but what negative implications would a formal diagnosis have? Please also discuss with either your GP and/or the doctor who diagnosed your daughter how often she would be re-assessed following diagnosis (as you rightly point out, she is only approaching three, and all children, autistic or not, will develop at different rates).

    I totally agree that she needs some type of help, but what the pediatrician said was that he can not give her any help unless she is diagnosed with something and Autism seemed to be at the top of his list. 

    I would take any help anyone would give me for my child but I am not having her diagnosed with something when she is only 2. I have a friend whith a child who didnt speak till he was 4. So everyone learns and does things at different times. My eldest child was singing songs when he was 13 months old and my second child wasnt so its just differences in childeren and I dont understand how a trained doctor doesnt think of this.

    [Removed by Mod] has a key worker who has one to one time with her and teaching makaton, using picture signs with words etc and I and due to start doing the same at home.

    [Removed by Mod] is not intimidated by anything, she has no fear of people at all and will play along side or with them, she loves and has thrived at daycare since starting a year ago.

    (Hi 4390evans, I've removed your daughter's name to protect her privacy, Sofie Mod).

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