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Help with Diagnosis Stage - Parents

Voltaic

Previously when the people diagnosing my autism needed to speak to a family member who knew me as a child with enough knowledge to be able to speak about me in a detailed basis, they spoke to my auntie.  Sadly my auntie now has Dementia and will be unable to give an accurate description due to memory loss.

The only person left in my family who could basically speak to the specialists at this point would be my father.  However due to debts and a messy divorce and other unfortunate circumstances, he was hardly around to be able to view what I was like because he was always working.  He has even confused two people who bullied me back then as my friends.

So my goal is to try and get enough information as I can out of my auntie who came with me last time Dementia permitting so that I can help paint a better picture for my father of what I was truly like as a child.  To begin this I want to create a list of questions that I can put to my auntie (really the women who truly brought me up and the person I consider my mother).  I am however un-sure on where to begin so I thought I would come and ask everyone here for question suggestions on what to ask.

He will be taking these answers with him as he has also beginning to have the onset of Dementia so I want to help him in anyway I can to be able to give a truthful and accurate account of my childhood.  So any help given here will be truly welcome

Parents
  • Former Member
    Former Member

    There are many circumstances where nobody is available to provide witness evidence from childhood. Both my parents had died before I went for diagnosis. Lots of parents are uncooperative or their evidence is clouded by wishful thinking. Sometimes the parents or relatives will be people with undiagnosed autism given that it is often genetic. Undiagnosed people may not have normal views about how a child should behave.

    A skilled diagnostician should be able to use other evidence such as your own memories and descriptions of childhood and what happened to you and what you did. School reports may also provide insight.

    This is a topic that comes up on a regular basis on the forum and I know from reading other responses that other people have obtained diagnosis in similar circumstances to you and me. Discuss the issue with whoever is doing the diagnosis and see what they suggest.

    A couple of threads come back when you search for "parental evidence" in the forum search

    community.autism.org.uk/.../"parental evidence"

    Other threads have discussed this but hopefully you will get a picture of how flexible the process has to be to account for the different circumstances that people find themesleves in when seeking diagnosis.

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  • Former Member
    Former Member

    There are many circumstances where nobody is available to provide witness evidence from childhood. Both my parents had died before I went for diagnosis. Lots of parents are uncooperative or their evidence is clouded by wishful thinking. Sometimes the parents or relatives will be people with undiagnosed autism given that it is often genetic. Undiagnosed people may not have normal views about how a child should behave.

    A skilled diagnostician should be able to use other evidence such as your own memories and descriptions of childhood and what happened to you and what you did. School reports may also provide insight.

    This is a topic that comes up on a regular basis on the forum and I know from reading other responses that other people have obtained diagnosis in similar circumstances to you and me. Discuss the issue with whoever is doing the diagnosis and see what they suggest.

    A couple of threads come back when you search for "parental evidence" in the forum search

    community.autism.org.uk/.../"parental evidence"

    Other threads have discussed this but hopefully you will get a picture of how flexible the process has to be to account for the different circumstances that people find themesleves in when seeking diagnosis.

Children
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