• Replies 4 replies
  • Subscribers 25 subscribers
  • Views 1290 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

im at my whits end

novaliegh

can some one please point me in the right direction. my 9 yr old son is struggling with every day life i have been taking him to a child peaditrition since he was 2. they just keep saying he has language problems and has autistic tendancys but doesnt warrant eneough to have an ados assesment all because he doesnt have behavioral problems at school. although he is in a special group for reading and english has he is in yr 4 but only just finishing level 1. he suffers out bursts and struggles so much at home. can he have a form of autism even if he doesnt struggle in school with his behavior?

  • Hi Everyone,

    First time on here. My 11 year old son started secondary school in September. He was diagnosed with tourettes and Autism in May 2011. Since going back to his main stream secondary school we have had massive tantrums. He has been late for school for the last two weeks as it takes us about two hours to motivate him to go. At school they allow him to be in a classroom away from others if he wants. He has not got a statement yet but I am going to apply for one. He finds it really hard to concentrate and holds his ticks in if he can. The school has now told us he is having a detention tomorrow for being late and my son lost the plot at home and hit out for about an hour. He is refusing to go back to school now and said he will run away if they make him do the detention. Our social worker is going to try and talk to them tomorrow. They also decided to let me know in front of my son and others that I maybe fined if it continues and end up in court. This just added extra stress to the whole situation. My son refused to go to any of his lessons today until they offer him a helper. To date he attends three lessons a day and enjoys the ones where he has support. As most of the behavioural problems are coming out at home I am worried that the school will disagree he dosen't need a statement but I know he isn't coping with school. To finish off as I have gone on a bit the attendence officer tried to get my child to admit to why he doesn't like school as he said he doesn't know she said you do know. This just aggravated my son even more. I would appreciate any advice on this. Thanks for listening.

  • Push, push and push some more, no one knows your child like you do.

    I was told the same because my daughter was the model pupil in primary, highly accademic, well behaved. I started to believe it was bad parenting on my behalf!!

    She's now started comp and has fallen to pieces, her attendance is below 70% she's not coping at all, her meltdowns at home have become violent and her sensory issues have become much worse.

    My GP and her comprehensive school are being really supportive, I'm having real problems with child mental health services though who keep fobbing me off and giving me the run around. I'm going to see my MP this week as I'm seeing her deteriorate before my eyes!!

    Good luck with your assessments and if you still don't get anywhere keep pushing.

  • thankyou wendy i went in to the doctors a few month ago and i had a visit from a familly care worker and a play therapist today. the are going to assess my little boy over 3 appointments with thye first one being on wednesday the 14th of december then the other two will be after xmas. so maybe i have been heard this time. thankyou soo much for the info you gave im keeping a copy of the things just incase i need them in future.

  • Make an appointment with your GP and TELL them that you want your son referring to the Childrens Development Centre for an autism assessment. DO NOT TAKE NO FOR AN ANSWER. Go prepared

    e.g.

    Look at the symptoms of autism and for each sympton write down examples of how your son applies to that sympton. Ask your sons school and class teacher to write an assessment specifing how his behaviour/progress warrants an autism assessment. Just because he might not have BEHAVIOURAL PROBLEMS doesn't mean he isn't autistic. Is he set in his routine? Does he struggle to socialise with his peers? etc. I was brilliant acedemically at school but when it came to an unexpected change such as a teacher being off sick and having a substitute teacher cover, I just couldn't cope with the situation and switched off mentally as I couldn't come to terms with this sudden unexpected change that I wasn't prepared for.

    If after all this you are still struggling to get an assessment then make a complaint

    The Independent Complaints Advocacy Service (ICAS) in England

    ICAS supports patients and carers who wish to make a complaint about an NHS service. Advocates who work for ICAS are independent of the NHS and can help you explore all the options that are available to you.
    The advocates can help write letters to the relevant person in the NHS and support you at any meetings that you have to go to. They can also contact third parties and act on your behalf (if instructed to do so by you). Your local Patient Advice and Liaison Service (PALS) will be able to put you in touch with your local ICAS. You can get details of your local PALS from the yellow pages, your doctors’ surgery or local hospital, or online at www.pals.nhs.uk