Could I have Asperger's or am I just looking for an easy explanation?

Hello, and apologies for what is going to be a long post. When the idea that I might have Asperger's first dawned on me it seemed ridiculous, then it felt like a relief, then I felt like people would think I was just looking for an easy explanation for my social ineptitude that I could just use as a get-out-of-jail free card for not having to try any more... and maybe I am?

The reason I'm writing this now is that I feel in a bit of a crisis. I've been sitting crying and panicking in my office for an hour, because it was our Christmas fair at work, and I had to go and talk to people and risk running into colleagues I know and talk to them, including some girls who go on my bus who I now blank entirely because I can't cope with the social awkwardness. Which is just ridiculous and I can't go on like this, terrified of talking to other humans. I know I'm an introvert and I guess I might have social phobia, so maybe that's enough to explain my Asperger's-like tendencies? I would really appreciate your thoughts.

I'm in my early 30s and female, so I guess I would not present as typical. Here are the arguments, and some counter-arguments.

- I find it extremely difficult to make eye contact (this is what first started me thinking). I hadn't noticed I was abnormal in this way until some friends pointed it out, but now, when I remember, I make a conscious effort.

- All my life, I have found it incredibly difficult to make friends. Mostly as a child I had no real friends, occasionally one best friend but they never lasted. As an adult I have a very small number of dear friends, who are important to me. I have lost or come close to losing some of these friends, I think in large part because I don't know how to "give" to them, or really be a good or normal type of friend.

- I'm very bad at and don't enjoy small talk. I've got better at it by learning how. I remember a couple of really specific occasions when I've learned some specific rules. For example, as a child we had an assembly about politeness and I consciously taught myself to say please and was obsessed with opening doors for people for a while. And a few years ago, i.e. well into adulthood, I was talking about how I never knew what to say to a certain acquaintance, and the person I was talking to said she always asked him how his family was, and it was like a light bulb coming on in my head of yes! I can use this conversational strategy on almost anyone!... which I now do, having basically failed to really think of it before.

- Having "learnt" small talk, I can be not too bad at it, but I have no idea to progress that into being my authentic self with new people I meet, and therefore giving myself a chance to form a more meaningful relationship. By that I mean that I can be quite funny and apparently at ease on subjects like weather or food, but I'm basically acting and I don't find myself revealing my actual interests to people.

- On the other hand, when I *am* being myself, I'm always being accused of being "too serious".

- I can actually be very outgoing and confident, but this seems to be directly related to how clear my "role" is, whether explicit or implicit. For example, if someone asked me to show someone round where I work, I'd probably be perfectly chatty and funny and friendly, because i know I have a reason to talk to them and a role in the interaction. But if I just happened to bump into the same person, I would have no idea how to talk to them and find it awkward and difficult.

- Despite being an introvert, I do enjoy spending time with friends and friendly people that I feel comfortable with, which can include quite a lot more people than just my closest friends. In these circumstances, I can again be quite outgoing and talk/joke quite a lot - and I really do love interesting conversations.

- However, having to talk to strangers and acquaintances is somewhere between uncomfortable and terrifying. I used to be incredibly shy and taking me to a party full of strangers was the worst torture you could inflict on me. I've got better at it over the years - and when I'm doing it successfully it feels madly exhilarating - but it's still difficult and mostly makes me miserable.

- I feel safest alone.

- I have a history of depression, although recently it seems to be manifesting itself more as anxiety.

- Whilst I'm quite an emotional person, I find it hard to understand other people or really believe that they actually do have feelings.

- I think I'm reasonably caring and empathetic - other people and their emotions do matter a lot to me - but often I won't pick up on or fully understand how people are feeling unless they explain it to me explicitly in words (or give me other obvious clues like crying), rather than expecting me to intuit or imagine it. This is particularly the case when it's something that hasn't happened to me.

- I often find it hard to show sympathy or find the right words to connect with people, or know what to do to make them feel better.

- However, I don't feel like I have any trouble expressing or analysing my own feelings in general - although a lot of the time other people seem to give me new insights.

- When observing others (which I find interesting), I think I do pick up on social nuances and the way they react to each other, but I have no idea whether less or more than normal.

- I do worry a lot about what other people think about me and the judgements they might be making, and I have a constant background craving for the approval of others. I don't know if this is a way people with Asperger's feel?

- I enjoy spontaneity, but mainly when I have some degree of control over it (e.g. going out without a plan and just wandering about - but I decide or have a say in what I/we do). If my boyfriend does something like invite a friend over without telling me I find it very stressful.

_ I tend to have a mental plan of how things will go, and I get irrationally upset and stressed when reality doesn't comply, despite not having told the other people involved.

- I tend to find change hard.

- I've listened to certain audio books dozens of times, and it's like a safe place.

- I don't like loud noises.

- I do like and notice details, but I do see whole pictures too.

- I don't have obsessive interests or collections. There are a lot of things in the world that I find interesting, but actually find it impossible to be obsessively interested in one thing.

- I do get absorbed in things like drawing, reading, or stupid games, and will ignore the rest of the world. But, I find it quite hard to get into that state of concentration when I'm not engaged, and am often easily distracted from work.

- I can't multitask at all.

- I love language, stories, literature, and art, and I think in quite a metaphorical way, which I think is quite un-Asperger's-y, but maybe that's just a stereotype?

- I am interested in the natural world (I have a degree in biology), BUT in general I am more interested in people and human things than logical or mathematical things. I'm good with numbers and generally intelligent, but I certainly don't have any special talents in the numerical arena.

- I can't play chess to save my life, and am in general extremely bad at thinking several steps ahead. However, I am very good at spotting patterns (even when they aren't there!).

- I have an atrociously terrible memory. However, my short-term number memory is unusually good. I'm not synaesthetic but in my mind numbers do have colours.

- I'm incredibly messy and disorganised in general, but I'm "weird" about certain things, like things being in the right place in the fridge or my favourite ornaments being in the right places on the Christmas tree. When I was 12 I put all my books in alphabetical order by author. I enjoy chaotic and naturalistic design, but I hate it when things that are *meant* to be ordered aren't, so I'll straighten displays in shops and things like that.

- I have never in my life felt normal - always an outcast and feeling in some ways "better" than other people and happier to be myself, while another part desperately wanted to be normal and fit in.

Again, I apologise for the length of this... I needed to think it all out. Also apologies if I've accidentally based my ideas on any stereotypes or anything I've misremembered.

Right now I live abroad in a non-English-speaking country, so getting a diagnosis isn't really an option. One day I guess it might help in terms of accepting who I am, but more than that I want to actually get better at people so that my social and personal lives can be less of a disaster, and I want to understand how I can have a better relationship with my partner (who is bad at expressing his feelings but I think basically neurotypical - definitely more than I am !).

Thank you, thank you, thank you if you got this far. Whether or not I'm diagnosable I'm definitely weird and lonely, and really appreciative of your understanding and thoughts.

Edit: just to clarify, by "easy explanation" I didn't mean that Asperger's is easy. Rather that there is a part of me that always thinks that I could make friends and find socialising easy if I just made more of an effort, and sees giving myself a label as backsliding. I'm aware that this part of me is a ***!

  • Hello.  I saw a programme yesterday featuring a person wth Aspergers, and many things felt similar.  I made a list this morning, so smiled when I did an internet search and came across this post.

    Thoughtfox, did you go for a diagnosis?  If so, what happened.

  • Former Member
    Former Member

    Having Asperger's is hard, no doubt about that. Not knowing you have Asperger's is actually harder in my opinion.

    If you know that you have it then you can work to understand it and deal with it as best you can. If you don't know you have it then you are likely to have a completely baffling undecipherable life.

  • My main thought is, you think Asperger's is an easy answer.

    It may be in terms of an answer but not in terms of living with it

  • Hi Thoughtfox

    As Telstar said 'Reading your post was like reading a description of myself, give or take one or two differences'

    I was diagnosed earlier this year at the age of 50! I have told family and only one friend. I don't think it has sunk in with anyone yet. Everything goes on much as it did before, largely because it feels too difficult to request that people do things differently for my benefit!

    In terms of having the diagnosis I have felt that it could be useful (but haven't used it just yet) when making phonecalls to say - the tax office - or the like. They tend to start telling you - do this then do that then do .... What sounds like 200 more things (brain melt and panic sets in)! I feel I can now, if necessary say, I'm sorry, I have Aspergers so please can you go a little slower and simplify as best you can.

    good luck with going forward

  • Your list rings many bells in my head Thought Fox!  With only a few definite exceptions I could have written it myself, about myself.  

    I have not yet been formally diagnosed. I had a preliminary assessment which led to my first appontment for a formal assessment on Thursday (two daysago).  It was an extremely uncomfortable experience, which is how I find myself here - I'm hoping to find others of similar age (I'm 55), also in England, who have been or are going through the same process of diagnosis.

    I've done the Baron-Cohen test a few times and my average score is 41 (highest 44, lowest 37).  I have joined the Wrong Planet forum but it is extremely frustrating as most attempts at posting anything don;t work. It is also predominantly US-based.

    Good luck in your quest for self-understanding.

  • Former Member
    Former Member

    Hi Thoughtfox,

    Lots of very good points already made by other people.

    Your description sounds very typical and at the centre of all of this are your difficulties with communicating with others. Have a look at http://www.autism.org.uk/working-with/education/professionals-in-schools/breaking-down-barriers/asperger-impairments.aspx I suspect you may be able to see how your list of traits maps to the core difficulties that lead to diagnosis?

    Have you tried the free self test at http://aspergerstest.net/aq-test/ ? This is a surprisingly reliable indicator (it isn't a diagnosis!). It has a proper clinical pedigree and it isn't one of the common internet quizzes that mean nothing.

  • Hi Thoughtfox

    Here's the problem with 'lists of traits'. Most people will be able to 'identify' with at least one, but more likely multiple, traits. Telstar makes the point admirably.

    Traits in themselves do not necessarily constitute, or indicate, ASD. The diagnosis itself relies on the combination of traits, and how they affect you and your life. There are a few of us who think that the way diagnosis is carried out may be flawed anyway, but identifying and diagnosing ASD is an evolving process.

    We hope, but have no indication, that sites such as this, and our discussions, are helping to inform the professionals.

    It is fine to identify yourself as ASD, and you are welcome here to discuss it, but I say the same to you as we often repeat to others - we are not qualified to diagnose, and whilst we can say 'yes, those are traits and effects, we cannot be relied on for anything other than help and support. You are definitely welcome to those..

    I have a major issue with those who debunk the formal diagnosis process. Not having had one themselves, they cannot speak with any authority about it, so the things they say about it simply point out that they are unaware of it, have no personal experience of it, and cannot imagine that there are any benefits. All I can say is that I have my formal diagnosis, it has helped enourmously, and at least I speak with full credibility. There are plenty of threads on this site where the issue is discussed in more detail, so I urge you to find and read them, inform yourself, and make your own decision. We are happy to discuss that with you at length, if you need to.

    I would urge you to seek a formal diagnosis, based on what you've said here. I'm confident that if you print your post above and show it to your GP, you'd get a referal. The only question for you to answer, really, is whether or not you think that your life is negatively affected and made difficult by it. If you are comforted just by being on here with us, that's absolutely fine too.

  • Hi,

    You mentioned seeing numbers in colour. If you see them involuntarily in colour and the colour is the same each time, then this categorically is synaesthesia! I have this condition myself. For me, numbers, days, months, and words are in colour - colour grapheme synaesthesia. I also see them spatially arranged in my mind, and I also project the colours onto the written page. There are many different types  of synaesthesia though. Synaesthesia is more common among people with autism.

    The key for diagnosis is how far you think a formal label will help you in your day to day life, in terms of mental health and adjustments - to what extent does the condition cause disability or problems. There has to be a 'clinically significant impairment', not just a collection of traits. It can help, if you decide to get assessed, to bring someone along who knows you well - a parent or close friend. A parent is better because they would have the whole picture, and can remember things about you when you were a toddler or small child that might help the process. Also you might have school reports that help with the process. Assessors are particularly interested in your early development because this will help determine if the problem is truly developmental or has later onset, in which case it would be a mental health problem. There are many different developmental conditions, though, which can have overlapping traits, such as ADHD or dyspraxia. I would keep an open mind to avoid disappointment. 

  • Welcome, thoughtfox.

    Reading your post was like reading a description of myself, give or take one or two differences.  I'm currently awaiting a full diagnosis, having been told by a professional I presented with several ASC indicators.  I can't offer much advice at the moment (I'm still learning much about autism spectrum conditions), but there are many on here who are very helpful, and will be able to provide more tips, as has James2015.

    In fact, James2015 makes a very relevant point about checking what other people have said or written - misunderstanding or missing things can be a huge problem for me, and has been throughout my life.  However, sometimes bringing it to someone's attention can really help, if I can give you an example.

    Last week I was attending hospital for a physical ailment, and a nurse instructed me on a procedure, which I totally failed to process and understand.  I mentioned that I was being assessed for an ASC, and she then explained the procedure again for me, making sure I was able to understand clearly what was required, but without any condescension.  This time, I totally understood!

    Others have opined on here (quite rightly) that there are certain times when disclosing a condition (either diagnosed or suspected) may not always be a good idea, and I would definitely agree with that.  But, at least when talking to medical staff, which I have had to do at several points this year (excluding my initial ASC assessment), I have found this a coping strategy which really works for me.

    I'm sure many other of the members of this forum will be able to help you with their experiences, but for now, welcome here, and I hope being here will help you.

  • Thank you again! It does help, by making me think further and arrive at the conclusion that most of my problems are less about misunderstandings and more about avoiding communication altogether, even with people I'm close to... and I can see that I need to work on that in the important relationships.

    That said, bluntness (or as I like to call it, honesty) can be an issue! :)

  • That's quite a tough question.

    It would have to be to do with communication, something most people struggle with to some degree anyway. For me, if the relationship matters a lot - such as with close friends, family or for work - I do try to check my understanding with the other person about what has been said or written, and ask them to tell me as soon as possible if what I have said doesn't make sense or seems a little odd. This has helped avoid some awkward misunderstandings but does not come naturally. Most of my social gaffs are due to me taking things far too literally or being to blunt in return.

    Hope that helps, if it makes sense.

  • Thank you, James2015, I really appreciate your reply and your welcome, what you said about adding "analytical" made me laugh. People tell me I overthink, and it took me a long time to accept that that was even a valid concept :)

    I think my biggest fear is diagnosing myself and starting down this path, and then for the reaction to be that I'm not really Asperger's and that I'm an imposter and that I don't deserve to be part of the community or to give myself any kind of break. Not really rational I know - and if it helps, it helps, so who cares - but I don't think I could deal with thinking I'd found my people and being rejected AGAIN. Now I'm writing this I can see that a diagnosis would be more helpful than I'd thought, so thank you, you've helped already! A bit too difficult for practical reasons right now, but something to bear in mind.

    Would you mind sharing what your top most helpful adjustment or request? I find it hard to envisage what they might be.

  • Hi Thoughtfox, and welcome.

    You could add 'analytical' to your list - you have done a marvellous job of identifying your behaviours, likes and dislikes. Certainly you have a lot of traits associated with Aspergers. I remember this time last year being in a similar position myself but bare in mind that no two people are the same.

    I was able to have a face to face chat with someone who has experience of Aspergers / autism and that helped settle my mind. For my own reasons I did get a professional assessment and that did bring confirmation, and in a form I could put in front of people at work. 

    Above all, realising that I have Aspergers (even without the formal diagnosis) has brought relief and a new focus on my whole life. I now know, from what I have read here at the NAS and elsewhere, that a few adjustments in how I relate to others and a few requests for how those who work or live with me, can make a huge difference. There is no reason to tell people why you want them to change how they relate to you if you don't want to - just tell them it would make it easier for you both.

    You say you have already learnt a few coping strategies for some situations. If you can learn a few more from the experiences of others then I think you will quickly notice a change in your life.

    Go for it! You have already started down the path to increased understanding and confidence. There are lots of people here who are happy to encourage you, with help if you need it.