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Should I get assessed ? Honest thoughts please

shark-tank

Hey all

 

For the past few days I have been wondering about ASD, Im mid 30’s and I have had significant health issues throughout my life, I will try and summarise them as much as I can, but its likey to be a long post:

 

I have had selective eating disorder from the age of 3-30 – eating nothing but crisps, I have made strides in this area but my diet is still very limited.

 

I suffered PICA from the age of around 5-18 mainly eating plasterboard, tarmac and paper (paper and cardboard still are a weakness)

 

I bite my finger nails to the nail bed (have done since I was around 10) and then the skin around the nails

 

I ALWAYS wear socks and cant stand the feeling of nothing on my feet

 

I was diagnosed with PTSD and ME 3 years ago

 

I cant look people in the eye, I get red-faced and well up talking to people

 

I am more than happy to sit in and not go out

 

2 of my children are bring assessed for ASD by school

 

I struggle with loud noises groups of people , whereby I’ll avoid them as much as I can

 

When something engages me, I tend to try and get as much information about it as I can, or if I take up a hobby I’ll have to buy several of the things in question (Say collecting mugs, I’ll try and collect 3 of the same one, just in case)

I am awaiting the community meatal health team for my anexiety and PTSD , I was assesed twince but we moved and as such I had to be assessed again (however this was just for the PTSD) and was wondering, should I mention it to them when I see them (in december) or should I speak to my GP before this?

 

Thanks for your time.

Parents
  • Former Member
    Former Member

    The medical assessment is done with a combination of questionnaires and discussions and observations of you and possibly your parents. Parental input is generally not essential and, I think in your circumstances, should be avoided. I was diagnosed without parental input and this is quite common.

    The following is my understanding from being diagnosed, from trying to work out what happened in my life, (and my father's life and his family's life) from reading this forum and from reading some books on the subject. I am not a doctor so you will need to discuss this with perhaps your GP or a specialist psychologist - presumably you are getting specilist help for the PTSD?

    Autistic people are often bullied and abused. I was bullied at school and also in work. We can be very bad at communicating and people don't understand this and they don't make allowances for it so things often escalate into shouting and abuse. We don't react well to criticsim and this also helps things to get out of hand. It isn't our fault, our genes give us a problem and a lot of stuff flows from that. Your children are probably hard for you to manage? You may well struggle to understand them and they may struggle to understand you - the situation needs extra special patience and understanding. The cycle of problems can be broken and your life can definitely be massively improved.

    One or both of your parents may have been affected too? Sometimes autistic people make very bad parents as they totally fail to communicate with their children. This happened in my family (grandfather was bad!) but with some understanding of autism there is absolutely no need for this to continue.

    I really hope that you can get some help to sort things out. You have had a harsh life so far. Be kind to yourself and let people help you to make it better.

    Sox

    x

Reply
  • Former Member
    Former Member

    The medical assessment is done with a combination of questionnaires and discussions and observations of you and possibly your parents. Parental input is generally not essential and, I think in your circumstances, should be avoided. I was diagnosed without parental input and this is quite common.

    The following is my understanding from being diagnosed, from trying to work out what happened in my life, (and my father's life and his family's life) from reading this forum and from reading some books on the subject. I am not a doctor so you will need to discuss this with perhaps your GP or a specialist psychologist - presumably you are getting specilist help for the PTSD?

    Autistic people are often bullied and abused. I was bullied at school and also in work. We can be very bad at communicating and people don't understand this and they don't make allowances for it so things often escalate into shouting and abuse. We don't react well to criticsim and this also helps things to get out of hand. It isn't our fault, our genes give us a problem and a lot of stuff flows from that. Your children are probably hard for you to manage? You may well struggle to understand them and they may struggle to understand you - the situation needs extra special patience and understanding. The cycle of problems can be broken and your life can definitely be massively improved.

    One or both of your parents may have been affected too? Sometimes autistic people make very bad parents as they totally fail to communicate with their children. This happened in my family (grandfather was bad!) but with some understanding of autism there is absolutely no need for this to continue.

    I really hope that you can get some help to sort things out. You have had a harsh life so far. Be kind to yourself and let people help you to make it better.

    Sox

    x

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