Why Get Diagnosed?

Hi,

I'm an adult (31), female, and I think I might have mild autism. I wanted a diagnosis, and the mental health team (with whom I'm involved for anxiety) gave me the AQ10 questionairre thingy, on which I scored 8/10, but when I took it back to my GP she said something like that they don't really have any facility to diagnose adults and it wasn't that important anyway- I should focus on my other health stuff. I have severe anxiety, complete agoraphobia (I don't leave the house at all except for tests / specialist appointments at the hospital), and emetophobia, and digestive problems for which I've had an intestinal bypass- that's what the specialist appointments etc are to do with. 

I like my GP a lot- she's been very kind to me helping with my physical health problems, and very understanding about the anxiety stuff. My previous GP was nothing like that, so I really appreciate her. I do not want to make her mad at me, or get her into any trouble at all, but I'm a bit disappointed I can't get diagnosed. 

I guess I'd just like some advice- what should I do? What would you do? Is there any way I can press this without making my GP dislike me? Or is it best to just drop it? Does getting diagnosed make any real difference to your life? Does it help with studying / benefits / would it affect the treatment I get for anxiety? I'm already signed off sick, and I don't know if I really need any support for the autistic traits- they've always just been part of my personality, but I'm not sure how much the anxiety is tangled up in it, or whether that matters at all for treatment purposes? I might be completely wrong, anyway- I might just be an oddball and not autistic at all! I have a lot of the traits, but certainly not all of them. I guess I just got a bit of a bee in my bonnet about it and I'd really really really like to know. 

Parents
  • Drat and balls. I wrote a long reply and then it told me I wasn't logged in and lost it. -_- 

    In short, I was saying that I think the agoraphobia is more to do with the combination of nausea and phobia about that, than fear of people per-se- I do worry that they'll be mean to me if they see me throwing up, and because moving around too much / travelling generally increases my nausea and pain and I don't LIKE throwing up, so I'm highly motivated to avoid anything that makes it more likely. I think the only sort-of autistic thing in there is that I cannot get over the assumption that other people will react with the same abject horror that I do to seeing someone vomiting, even though I know academically that 90% of people just aren't that bothered, I can't understand it. 

    On persuing it more aggressively / legal rights etc, I'm not in the same position as people who just have bad GPs at all, mine is lovely, and the problem is I don't WANT to fight her or go over her head- and I'm not even sure she's wrong- she has to think of everyone, after all, and allocate resources and funding to those most in need, whereas I only have to think of me and what I want / need. I think the problem is.. I find it weird to think that I wouldn't benefit from diagnosis- that it just isn't important. I feel like I'm missing something, but until I know exactly what it is, and I can go to her and say "I need diagnosis because X" I don't even feel I have a very strong case. 

    Re persuing it though the mental health people- as far as I understand, the assessors are now done with me- I won't see them again, and I'll have no contact until whoever is going to do CBT to me gets in touch- long waiting list. I've already been on it quite a few months. I'll probably mention it to them when I meet them, anyway- just to see if they see any of the traits in me- it'd be really interesting. Boyfriend does- in fact he's the one who keeps pushing it- I came accross aspergers ages ago and thought oh, that sounds a lot like me, but I'm coping so who cares? And forgot about it, but boyfriend recently discovered it, and he says it'd explain a lot, and make it easier to be patient etc with my slightly less.. charming traits! Then again, that could be bad- I do think people should be berated for bad behaviour, even if there is a reason for it. I don't want an excuse to be a brat... but I do rather hate it when he gets angry at me for being unreasonable and I'm TRYING but I'm just so irritatingly illogically fixated. It bothers ME so I understand totally why it's annoying for him. That would be a good place for the patience card. Ahhh rambling. Erm.. what else? Oh, just that I'd really like other peoples' opinion on whether I sound like a good match for it. Hopefully I can at least get a bit of that here. 

Reply
  • Drat and balls. I wrote a long reply and then it told me I wasn't logged in and lost it. -_- 

    In short, I was saying that I think the agoraphobia is more to do with the combination of nausea and phobia about that, than fear of people per-se- I do worry that they'll be mean to me if they see me throwing up, and because moving around too much / travelling generally increases my nausea and pain and I don't LIKE throwing up, so I'm highly motivated to avoid anything that makes it more likely. I think the only sort-of autistic thing in there is that I cannot get over the assumption that other people will react with the same abject horror that I do to seeing someone vomiting, even though I know academically that 90% of people just aren't that bothered, I can't understand it. 

    On persuing it more aggressively / legal rights etc, I'm not in the same position as people who just have bad GPs at all, mine is lovely, and the problem is I don't WANT to fight her or go over her head- and I'm not even sure she's wrong- she has to think of everyone, after all, and allocate resources and funding to those most in need, whereas I only have to think of me and what I want / need. I think the problem is.. I find it weird to think that I wouldn't benefit from diagnosis- that it just isn't important. I feel like I'm missing something, but until I know exactly what it is, and I can go to her and say "I need diagnosis because X" I don't even feel I have a very strong case. 

    Re persuing it though the mental health people- as far as I understand, the assessors are now done with me- I won't see them again, and I'll have no contact until whoever is going to do CBT to me gets in touch- long waiting list. I've already been on it quite a few months. I'll probably mention it to them when I meet them, anyway- just to see if they see any of the traits in me- it'd be really interesting. Boyfriend does- in fact he's the one who keeps pushing it- I came accross aspergers ages ago and thought oh, that sounds a lot like me, but I'm coping so who cares? And forgot about it, but boyfriend recently discovered it, and he says it'd explain a lot, and make it easier to be patient etc with my slightly less.. charming traits! Then again, that could be bad- I do think people should be berated for bad behaviour, even if there is a reason for it. I don't want an excuse to be a brat... but I do rather hate it when he gets angry at me for being unreasonable and I'm TRYING but I'm just so irritatingly illogically fixated. It bothers ME so I understand totally why it's annoying for him. That would be a good place for the patience card. Ahhh rambling. Erm.. what else? Oh, just that I'd really like other peoples' opinion on whether I sound like a good match for it. Hopefully I can at least get a bit of that here. 

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