Lost after diagnosis

I'm a 43yr old woman. I've suffered from depression and other associated mental health issues most of my life. I finally got assessed last week and was told that I was on the spectrum. 

I thought I would feel relieved. My whole life I've been confused by social interaction, and told by everyone that I just needed to try harder to be social. I was resigned to being socially awkward, and now I know, at least, that there's a reason behind it, and thought maybe I could cut myself a break now. I think, very probably, that it's been the cause of my depression too. I don't really know anything about Asperger's but it seems to make sense.

I don't really have much social interaction. I have a dog and I have to talk to other dog walkers every day but only briefly. I work at home and don't go out otherwise. I have two friends that I usually speak to on the phone once a week.  Otherwise I have friends online that I write to.

This last week though, I find myself analysing everything I'm saying. I realised that 80% of my conversation to my friends is me not understanding an aspect of human behaviour or them having to explain stuff to me. It's making me really self conscious. 

I haven't been able to bring myself to tell my family yet. They live far away, and I feel like they won't be supportive anyway. 

I thought getting diagnosed would help but right now I feel even more isolated. I don't want to talk to anyone. I really hoped this would make things better, but I don't know how to make that happen.

Parents
  • Former Member
    Former Member

    Dear gojojo,

    gojojo said:

    my life has completely fallen apart since diagnosis.  The shame and guilt I feel that all the interactions I've had with people have all been my fault, that i don't and never will fit in, that when people don't understand me it is my fault not theirs.  I have had months of therapy with an autism "specialist" and am no nearer to self acceptance

    ....

    i realise that for me the biggest hurdle is learning that I will always be different and marginalized at least before this I was hoping that one day the depression would lift and I would be "normal".  I am now trying and struggling to accept that I will always be different, unintentionally cause offence and will have to learn to adjust to being lonely and depressed as this will never change.

    I'll start by admitting that I am a man but I think you will find that there are female posters on the forum who have had positive experience after diagnosis.

    I think that the first year after diagnosis can be very tough. I had an inital period of euphoria as I thought I understood things better. I then came down to earth with a crash as my employers didn't take diagnosis as sufficient explanation for what had happened in that job. 18 months later and I am now starting to have moments of pure fun which is quite a change as I was in a very bad mental state 18 months ago.

    Some things will not change (we will always have issues with some things - it is a permanent condition) but some things are not permanent. For example, depression is not a permanent and inevitable consequence of autism. It is common but it can lift (speaking from my own experience) as you learn to live with the condition.

    It is miserable and awful to read about your feelings of shame and guilt. Can you bear to give yourself a break and not be so hard on yourself? We can be very judgemental and we can see things in very black and white terms but why condemn yourself for something that you did not do deliberately? I think we should be conscious of the impact that we can have but is anyone blaming you for being the way you are?

Reply
  • Former Member
    Former Member

    Dear gojojo,

    gojojo said:

    my life has completely fallen apart since diagnosis.  The shame and guilt I feel that all the interactions I've had with people have all been my fault, that i don't and never will fit in, that when people don't understand me it is my fault not theirs.  I have had months of therapy with an autism "specialist" and am no nearer to self acceptance

    ....

    i realise that for me the biggest hurdle is learning that I will always be different and marginalized at least before this I was hoping that one day the depression would lift and I would be "normal".  I am now trying and struggling to accept that I will always be different, unintentionally cause offence and will have to learn to adjust to being lonely and depressed as this will never change.

    I'll start by admitting that I am a man but I think you will find that there are female posters on the forum who have had positive experience after diagnosis.

    I think that the first year after diagnosis can be very tough. I had an inital period of euphoria as I thought I understood things better. I then came down to earth with a crash as my employers didn't take diagnosis as sufficient explanation for what had happened in that job. 18 months later and I am now starting to have moments of pure fun which is quite a change as I was in a very bad mental state 18 months ago.

    Some things will not change (we will always have issues with some things - it is a permanent condition) but some things are not permanent. For example, depression is not a permanent and inevitable consequence of autism. It is common but it can lift (speaking from my own experience) as you learn to live with the condition.

    It is miserable and awful to read about your feelings of shame and guilt. Can you bear to give yourself a break and not be so hard on yourself? We can be very judgemental and we can see things in very black and white terms but why condemn yourself for something that you did not do deliberately? I think we should be conscious of the impact that we can have but is anyone blaming you for being the way you are?

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