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NHS autism assessment, December 2015

shinkansen1966

In November 2014, I was diagnosed with ADHD. This assessment for this diagnosis was at the [removed by mod] NHS hospital ADHD unit. The specialist who assessed me said he was "pretty sure" I was on the autism spectrum. He decided to refer me and so my autism spectrum disorder (ASD) assessment will also be [removed by mod] NHS hospital. This will be on 8 December 2015. 

The ASD unit have emailed me saying this forthcoming assessment will last about 2 hours.   

During this initial 2 hour assessment, I was wondering what I can expect to happen with tests and evaluation ? What can I ask beforehand ?

Appreciate any guidance or advice. 

 

Parents

  • Are we allowed to comment on our own assessments?

    I only say this because I know myself I decided to go into the assessment having doing a very tiny amount of research and came across the sentence, Autism affects us all in unique ways. Therefore I knew it was no point being anything else other than yourself.

    Please delete this part if we not allowed to share. Previous to the assessment I was sent  questionnaire which because my mum is still alive, she had a part to complete too. She came with me to the first assessment. That lasted for about two hours. It goes into history of you as a person. If you still have them they would like to see school reports and everything you have of that nature. If you can anyone with you that can talk about you as a child and what you were like etc.  Then another part of the assessment, what happened for me is that they saw my mum seperate from me which made it easier all round as I didn't have to hear anything perhaps too...  So I don't know what questions they asked her. Then at my second assessment. I was asked to play.  It may seem a bit much at 45 year old to do story telling and playing with puzzles and things, but it a universal way they can use for the assessment. I won't tell you what I played at, but it was play. It was far easier than the first session for me. But almost challenging in different ways.

    It may depend on what assessments they use.

    Actually I had a final assessment at which the main diagnosis docter was at and he asked me questions which lasted for about half an hour. He was there to tell me my diagnosis. Right at the beginning I was warned I may not get the diagnosis I am looking for. Most people don't. The Doctor is present for the final diagnosis because he is very good at signposting if the diagnosis isn't what was hoping for.

    I was lucky because they had referred me for Aspergers. It wasn't Asperger's but Autism. Am2/3rds Autistic and PDD - NOS.  I was very relieved as that was enough for me to get me the help I needed. I had heard about Autism traits. And after the assesments I had caught up on all reading and I fitted the female autism very much and at the follow up sessions I was also told all this. It helps me enormously

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  • Are we allowed to comment on our own assessments?

    I only say this because I know myself I decided to go into the assessment having doing a very tiny amount of research and came across the sentence, Autism affects us all in unique ways. Therefore I knew it was no point being anything else other than yourself.

    Please delete this part if we not allowed to share. Previous to the assessment I was sent  questionnaire which because my mum is still alive, she had a part to complete too. She came with me to the first assessment. That lasted for about two hours. It goes into history of you as a person. If you still have them they would like to see school reports and everything you have of that nature. If you can anyone with you that can talk about you as a child and what you were like etc.  Then another part of the assessment, what happened for me is that they saw my mum seperate from me which made it easier all round as I didn't have to hear anything perhaps too...  So I don't know what questions they asked her. Then at my second assessment. I was asked to play.  It may seem a bit much at 45 year old to do story telling and playing with puzzles and things, but it a universal way they can use for the assessment. I won't tell you what I played at, but it was play. It was far easier than the first session for me. But almost challenging in different ways.

    It may depend on what assessments they use.

    Actually I had a final assessment at which the main diagnosis docter was at and he asked me questions which lasted for about half an hour. He was there to tell me my diagnosis. Right at the beginning I was warned I may not get the diagnosis I am looking for. Most people don't. The Doctor is present for the final diagnosis because he is very good at signposting if the diagnosis isn't what was hoping for.

    I was lucky because they had referred me for Aspergers. It wasn't Asperger's but Autism. Am2/3rds Autistic and PDD - NOS.  I was very relieved as that was enough for me to get me the help I needed. I had heard about Autism traits. And after the assesments I had caught up on all reading and I fitted the female autism very much and at the follow up sessions I was also told all this. It helps me enormously

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