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Has he/hasn't he

Cenaj

Hello there,

I'm new to the site and have already found it very helpful.

If someone could look over my list below and give me honest opinions that would be great. My son is 33 months old. I should mention he was very premature at 26.1 weeks gestation. for a while now he has been showing the below signs (as I understand it) of ASD. 

• fleeting eye gaze

• severe GDD

• is friendly but doesn't know how to join in and prefers to play alone

• is funny with my mum and sister even though he sees them every day

• lays on his side to play with some toys, particularly cars

• 80% of the time doesn't respond to his name

• wakes frequently in the night

• would run into the road or run off if he could

• walks on tip toes and has a gait

• I have many mini routines that must be followed

• has no spacial awareness

• lines/stacks some toys up every now and then, doesn't get mad if I knock them down

He is a very happy and smiley little boy and enjoys cuddles (on his own terms)

Is there anything else I could be looking out for as an indicator?

Thankyou for taking the time to read this.

Parents
  • Former Member
    Former Member

    Hi Cenaj,

    Thanks for the clarification. It sounds as though you are well and truly into the system and that you are getting good support.

    I'm not a clinical expert, I discovered I had ASD at age 56 after many years of every mixed success in the world and have found this site invaluable for suggestions and materials. You don't need a diagnosis to make use of the forum and many people are are just looking to see what fits and what doesn't.

    Your list has some characteristics that are found in people with ASD but also in other people with development delays or disorders from other sources. Bad eye contact, for example, can come from all sorts of things - we can't make anything of it so we don't do it. Other people will have other nervous system problems that would have the same effect. Diagnosis is different and often far from certain. There are things that add confidence to the diagnosis - family history for example - but it is not at all a precise process.

    I'm not quite clear about exactly whay you want to get from an ASD diagnosis? I would hope that portage and salt etc will be tailoring what they do to suit him and are already likely to be doing the things that would help an autistic child in any case.

    For adults with ASD we aren't delayed in some things - we just don't have the brain wiring to naturally make use of eye contact and some of the social tools that other people have. The delay can be permanent, it isn't in our genetic blueprint for how we are supposed to develop - the wiring will never develop in us. I don't know whether the effect of a prem birth can have the same impact as the effect of our somewhat dodgy or at least "different" genes. (The genetics is complex and this is my understanding of why I am as I am)

    I do hope that you find things here and elsewhere that help. If you find something that works for him then use it. Don't be afraid to be unconventional but do be wary of the miracle cures that are offered - gene therapy in Panama for example! Getting the right understanding and things in place can make an enormous difference to the outcome and happiness of whatever the future holds for him.

    Take care

    :-)

Reply
  • Former Member
    Former Member

    Hi Cenaj,

    Thanks for the clarification. It sounds as though you are well and truly into the system and that you are getting good support.

    I'm not a clinical expert, I discovered I had ASD at age 56 after many years of every mixed success in the world and have found this site invaluable for suggestions and materials. You don't need a diagnosis to make use of the forum and many people are are just looking to see what fits and what doesn't.

    Your list has some characteristics that are found in people with ASD but also in other people with development delays or disorders from other sources. Bad eye contact, for example, can come from all sorts of things - we can't make anything of it so we don't do it. Other people will have other nervous system problems that would have the same effect. Diagnosis is different and often far from certain. There are things that add confidence to the diagnosis - family history for example - but it is not at all a precise process.

    I'm not quite clear about exactly whay you want to get from an ASD diagnosis? I would hope that portage and salt etc will be tailoring what they do to suit him and are already likely to be doing the things that would help an autistic child in any case.

    For adults with ASD we aren't delayed in some things - we just don't have the brain wiring to naturally make use of eye contact and some of the social tools that other people have. The delay can be permanent, it isn't in our genetic blueprint for how we are supposed to develop - the wiring will never develop in us. I don't know whether the effect of a prem birth can have the same impact as the effect of our somewhat dodgy or at least "different" genes. (The genetics is complex and this is my understanding of why I am as I am)

    I do hope that you find things here and elsewhere that help. If you find something that works for him then use it. Don't be afraid to be unconventional but do be wary of the miracle cures that are offered - gene therapy in Panama for example! Getting the right understanding and things in place can make an enormous difference to the outcome and happiness of whatever the future holds for him.

    Take care

    :-)

Children
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