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Definitely NOT autistic...

bukko

Hi,

my switched-on GP referred me for diagnosis about 5 years ago.

Finally last year, my local Asperger's centre told me I only got 4 out of 5 ticks so a positive diagnosis wasn't possible.

The tick that was missing was the "Evidence of childhood history" one. This is because as a child I hid the fact that I was different, I lied to my Mum who had enough to deal with in her abusive relationship. She thought I had a normal life, she had no idea that I was virtually unable to interact with other people at all, had no friends, kept myself to myself at school. And she was still unaware when I told her a few years ago.

As a result I have no diagnosis and I have no access to any of the magic treatments that I am sure are being hidden from me.

(Ok that may have been a joke)

So in the absence of any official support, what can I do to improve my situation?

I am told that I rank in the top 1% IQ wise but I really don't feel smart. I would love to be able to take advantage of what I have, rather than feel depressed that there is stuff I will never be able to do.

If you don't have an answer for me, please just say Hi :)

Parents

  • This one puzzles me. The reason they want to know about childhood is to see if you had the right kind of delays or competencies at that time to fit autism. But surely that test was designed for childhood autism diagnosis.

    There must be lots of adults who don't have living parents who can describe their childhood, or don't have extant school records.

    It particularly raises an important question with regard to homeless people. There is evidence that a high proportion of rough sleepers have autism traits. Some may have had a diagnosis but have long been separated from their records. Others might need a diagnosis but would be denied help by this reasoning.

    Challenge the decision. You may be able to get a conditional diagnosis at least, ie one where the evidence requirement is complete, but the diagnosis is otherwise likely.

    I do wonder who has the condition - us or the professionals?

Reply

  • This one puzzles me. The reason they want to know about childhood is to see if you had the right kind of delays or competencies at that time to fit autism. But surely that test was designed for childhood autism diagnosis.

    There must be lots of adults who don't have living parents who can describe their childhood, or don't have extant school records.

    It particularly raises an important question with regard to homeless people. There is evidence that a high proportion of rough sleepers have autism traits. Some may have had a diagnosis but have long been separated from their records. Others might need a diagnosis but would be denied help by this reasoning.

    Challenge the decision. You may be able to get a conditional diagnosis at least, ie one where the evidence requirement is complete, but the diagnosis is otherwise likely.

    I do wonder who has the condition - us or the professionals?

Children
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