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People who self-diagnose gaining access to services

Shek

A major autism organisation is giving access to groups/services for adults with Asperger's and high functioning autism to adults who self-diagnose.

Those who self-diagnose are highly motivated, unlike many adults with autism where motivation can be an issue.  They are more likely to attend groups than those with significant problems. These self-diagnosed adults as service users have a say in how services are run.  In this organisation, they want groups set up that exclude those with Asperger's and high functioning autism who have more problems than they do.

This mirrors what has happened in some online groups for people with Asperger's that have been dominated by those desperately seeking a diagnosis.

What other condition allows those that self-diagnose to be given access to services?  It could be argued that everyone as some autisitic traits i.e. is on the autism spectrum.  But surely the point of diagnosis is to identify those that are in need of support services.  To be given a diagnosis, there must be 'significant impairment'.  Many of those desperate for a diagnosis do not meet the criterea.  For many 'Asperger's Syndrome' seems a trendy diagnosis - it doesn't have the baggage of many conditions linked to the mind/brain.  They have little awarenees of the many difficulties faced by those living with Asperger's/high functioning autism.

I believe allowing people who self-diagnose access to services makes diagnosis meaningless.  In the long term, it is likely to have a negative affect on funding for services for adults.

What are your thoughts?

 

Parents

  • There have been stories around about self diagnosis for years. The British way of doing things is "trickle-down" - the rich indulge and the money they spend benefits us eventually. There might be some benefits to this kind of thing.

    It may create a group of people who are willing to invest more money.  It may trigger more research. It will not necessarily put any strain on what resources are there currently but might raise the profile.

    Actual diagnosis is based on a clinician assessing people's self identification, via tests, evidence and corroboration which is itself largely circumstantial. It isn't that scientific. The increase of self diagnosis might open up debate.

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  • There have been stories around about self diagnosis for years. The British way of doing things is "trickle-down" - the rich indulge and the money they spend benefits us eventually. There might be some benefits to this kind of thing.

    It may create a group of people who are willing to invest more money.  It may trigger more research. It will not necessarily put any strain on what resources are there currently but might raise the profile.

    Actual diagnosis is based on a clinician assessing people's self identification, via tests, evidence and corroboration which is itself largely circumstantial. It isn't that scientific. The increase of self diagnosis might open up debate.

Children
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