Assessment outcome

Hi,

Our 3 year old son had his assessment observation yesterday, we were shocked at how the assessment was conducted! We were told that the professionals involved would observe and collate their findings to discuss with us further treatments and help available for any behaviours found.

Our son was observed in a play room setting with no other children present (we were told it would be a group setting), with 6 professionals observing him, playing with him, directing his play. Eg. Using orange blocks they said lets cook the carrots, my son copied what they did! My son responds better to adults than children, for instance he woud not initiate play and would need an adult to start the game and encourage him to stay on task. If he did stay on task he would become easily agitated with the child if they invaded his personal space, made a loud noise or did not play how he expected them to. This was not observed during assessment. 

The nursery my son attends wrote a report explaining his social difficulties and problems with communication, but the professionals appeared to base all of their findings on the days assessment during our feedback session. When I tried to explain all aspects of my sons difficulties: extreme sleep problems, speech and language delay, global development delay, unpredictability, impulsiveness, intolerance of crowded places and loud noises, routine changes, violent outbursts etc, they continued to bring their decision back to their findings during their play session.

Now, we are left in limbo as a family with no support for our son and no diagnosis to move forward in regards to gaining access to help for our son, his education and social skills. Can anyone offer any advice? Is it worth appealing their decision?

Thank you

Parents
  • I believe you are entitled to ask for a second opinion. Your local PALS (patient advice and liaison service) should be a good place to start in making a complaint or seeking a second opinion.

    If you think they haven't carried out the diagnostic process properly you might want to look through the NICE guidelines for diagnosing autism in children (www.nice.org.uk/.../1-recommendations). They are quite readable and don't take long to go through. From what you have said it looks as if they might not have followed the guidelines appropriately and this would be a good basis on which to ask for a re-assessment.

    Good luck!

Reply
  • I believe you are entitled to ask for a second opinion. Your local PALS (patient advice and liaison service) should be a good place to start in making a complaint or seeking a second opinion.

    If you think they haven't carried out the diagnostic process properly you might want to look through the NICE guidelines for diagnosing autism in children (www.nice.org.uk/.../1-recommendations). They are quite readable and don't take long to go through. From what you have said it looks as if they might not have followed the guidelines appropriately and this would be a good basis on which to ask for a re-assessment.

    Good luck!

Children
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