Son has refused the assessment

Well, the CPN and woman from the autism team came in the front door and our son escaped out the back!  He had initially agreed to the assessment but, he says, only because he felt that the psychiatrist was too insistant and he felt coerced.  And now he's saying he doesn't want it, he won't see them and it's his decision.  The trouble is, we have to live with the consequences of his decision too.  He's mucky, withdrawn and spends all day in ritualistic behaviours to avoid "negative energy" or else on his computer.  He also quite frequently blanks us and rarely goes out.  No friends and no contacts over the phone or internet either.  There's a real atmosphere in our home and, even if he insists that what he's doing is more likely to make him happy, I think he is making himself, and the rest of us, very miserable indeed.

Of course, we are running into issues around mental capacity here.  The psychiatrist insists that he has capacity and we, of course, would always want to promote autonomy and independence where possible.  But to us it seems that he is in the grip of delusional beliefs and that, without the effects of possible autism plus associated mental illness through years of non recognition of this, he certainly wouldn't be choosing to spend his life like this!  What on earth can we do?  He seems to be using his capacity to ruin his life and ours too!   

Parents
  • The relationship with services has been getting worse and worse.  it was never good and no progress has been made over the past 3 years.  I think that he doesn't trust anyone now, after so many false starts, things they said would work but didn't, meds he's been forced to take (under threat of hospitalisation).  I don't think he'll see anyone.   His plan, although he will say it's none of our business, is to continue clearing what he calls "negative energy" in his own ways.  Apparently we don't understand it so can't advise and it's not the sort of energy you might see written about in books on yoga or tai chi, so we can't use that to build a bridge to him either.  He also says that this process might take his whole life and that that's just the way it is. 

    I feel devastated.  We've tried everything and now it seems we just have to continue supporting him and waiting for him to change.  The CPN and autism team are thinking about it and say they'll get back to me with ideas for help, but what's the betting this'll all amount to stuff I could ust google and read about myself.  I hope they are able to offer some real, solid, expert advice but, after seeing so many consultants, I have my doubts. 

Reply
  • The relationship with services has been getting worse and worse.  it was never good and no progress has been made over the past 3 years.  I think that he doesn't trust anyone now, after so many false starts, things they said would work but didn't, meds he's been forced to take (under threat of hospitalisation).  I don't think he'll see anyone.   His plan, although he will say it's none of our business, is to continue clearing what he calls "negative energy" in his own ways.  Apparently we don't understand it so can't advise and it's not the sort of energy you might see written about in books on yoga or tai chi, so we can't use that to build a bridge to him either.  He also says that this process might take his whole life and that that's just the way it is. 

    I feel devastated.  We've tried everything and now it seems we just have to continue supporting him and waiting for him to change.  The CPN and autism team are thinking about it and say they'll get back to me with ideas for help, but what's the betting this'll all amount to stuff I could ust google and read about myself.  I hope they are able to offer some real, solid, expert advice but, after seeing so many consultants, I have my doubts. 

Children
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