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Do Not understand what is going on!!!

mum will sort it

My daughter has suffered with alot of problems since an early age - into her teens she's suffer with Anxiety, Depression, Self Harm Eating disorder and list could go on.

Shes been under Camhs on and off for years and despite my requesting they refused a Diagnosis test for Autism, in spite of the fact they failed to diagnose her brother through his years in camhs - (he was finally diagnosed at the age of 22 a couple of years ago)

I finally went for a private Diagnosis (2nd Opionion) and thier conclussion was Pervasive Development Disorder - Autistic Spectrum Disorder - ICD10 F84.0 He explained it to her as a HIgh Functioning Autism, similary Aspbergers. she cam a way happy with a diagnosis.


On the reciept of this information her Camhs consultant has said yes they were aware of some Autistic traits - but wanted to treat the anxiety, depression and Eating disorder as these where impacting on her life,

My daughter has always just asked that they tell her her whats is wrong with her and does she feel like this all the time - I just want to know is autism, bipolar or what- 

She is now going tohave a test to see what her stregnths and weakness are - she just want to know what to day when people ask without stringing of a load of disorders.

She has now become confused as he did not give her a label that she wants - How can i explain this to her so she understands.

Parents

  • I'll add my bit here and hope it helps, I can only try Smile

    What your daughter needs to grasp is that 'behavioural' difficulties have many causes and therefore many names. She needs to understand that ASD alone covers a great variety of behaviours, and that many of the characteristics can also be properly diagnosed as 'stand alone' issues, and don't always add up to the full diagnosis.

    That's why it is important for the professionals to gather as much information and observation as they can, and particularly with girls because they are so difficult to diagnose anyway, compared, apparently, to boys. It seems that only an NHS diagnosis is acceptable to the authorities - I've seen other stories about this.

    She certainly deserves an answer and of course she is distressed by having to wait. The same thing happens to many people, and we can undertsand how she feels. It's like being dumped in the middle of a desert, with no map and no landmarks, nothing to guide you - what do you do, where do you turn? It's horrible suspense for her.

    What she most needs is the right answer. Again, many of us have tales of constant misdiagnosis, and we don't want her to go through that either. Unfortunately, the right answer takes time, we would willingly change that if we could. In the meantime, we are here to help, support and understand - she is not alone.

Reply

  • I'll add my bit here and hope it helps, I can only try Smile

    What your daughter needs to grasp is that 'behavioural' difficulties have many causes and therefore many names. She needs to understand that ASD alone covers a great variety of behaviours, and that many of the characteristics can also be properly diagnosed as 'stand alone' issues, and don't always add up to the full diagnosis.

    That's why it is important for the professionals to gather as much information and observation as they can, and particularly with girls because they are so difficult to diagnose anyway, compared, apparently, to boys. It seems that only an NHS diagnosis is acceptable to the authorities - I've seen other stories about this.

    She certainly deserves an answer and of course she is distressed by having to wait. The same thing happens to many people, and we can undertsand how she feels. It's like being dumped in the middle of a desert, with no map and no landmarks, nothing to guide you - what do you do, where do you turn? It's horrible suspense for her.

    What she most needs is the right answer. Again, many of us have tales of constant misdiagnosis, and we don't want her to go through that either. Unfortunately, the right answer takes time, we would willingly change that if we could. In the meantime, we are here to help, support and understand - she is not alone.

Children
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