Adult daughter refuses diagnosis

Hi to everyone in this group from myself and my wife. We have a 21 year old daughter who we believe to be on the ASD, probably Asperger’s, she is not diagnosed and refuses to see the GP. During her school life she had a SEN statement and received teaching support for moderate learning difficulties.

Since finishing FE College at 19 she has stayed living with us but her ASD traits seem to be evolving into a more confrontational approach to anyone who tries to help her. She stays in her bedroom most of the day and seems to think we are shouting at her just by asking her a question. This creates a vicious circle of increased isolation as we are reluctant to engage with her due to the unpredictable responses.

We would be grateful if anyone in the forum would be able to advise us regarding the way forward so that we can help her to make the most of what abilities she has and minimise the increasingly negative aspects of her behaviour.

We are in the Merseyside area,thank you.

Parents
  • Thanks very much for the replies from you all, very interesting.

    Just to clarify that when our daughter got her SEN Statement in primary school it did say on it that she probably has Aspergers, but for one reason or another a formal diagnosis was never given. Perhaps in hindsight we should have persued this more at that time, but we are where we are now and according to some posters on here it is fairly common for a late diagnosis. We have only included a small sample of her behavioural traits but we could continue with many others all of which conform to the AS traits.

    We will continue to read this forum as it seems that there is a wealth of information to be learned from reading about others experiences which should help us to understand the condition better and therefore help our daughter as she progresses into adulthood.

    We will provide updates.

    Thank you all again

Reply
  • Thanks very much for the replies from you all, very interesting.

    Just to clarify that when our daughter got her SEN Statement in primary school it did say on it that she probably has Aspergers, but for one reason or another a formal diagnosis was never given. Perhaps in hindsight we should have persued this more at that time, but we are where we are now and according to some posters on here it is fairly common for a late diagnosis. We have only included a small sample of her behavioural traits but we could continue with many others all of which conform to the AS traits.

    We will continue to read this forum as it seems that there is a wealth of information to be learned from reading about others experiences which should help us to understand the condition better and therefore help our daughter as she progresses into adulthood.

    We will provide updates.

    Thank you all again

Children
  • I kind of know how you feel,  My daughter has Aspergers and is 18.  I am 61 and her mother and I have not been together for 18 years but I have been part of my daughters life growing up and paid for her support.  She is very bright 4.0 in all classes and accepted to all major colleges.  Her behavior is off the charts, she will have many melt downs during the day, if you ask her nicely to do something she will do the same as your daughter, she has no friends because of her social skills.  My main problem is a few months ago a psychiatrist told us she has Aspergers but her mother refuses to believe that.  My daughter lives with her mother and her mother had refused to bring my daughter to a psychiatrist until now.  The school system had asked the mother to please bring my daughter to a doctor to get analyzed but the mother refused and blamed her behavior on me because we were not together.  It has been a hard battle because I want my daughter to get the help she needs and therapy,  I wanted to have a family meeting with the doctor and the mother and my daughter refused to have a meeting.  I am 61 now and I worry what will happen with my daughter when I am gone?  Just thinking about it hurts me and I am very worried.  It has not been an easy 18 years.  As a parent the melt downs in public are difficult but I do my best to have my daughter calm down.  I want my daughter to get help before she hurts herself or others.