Triad of Impairments and research

I have followed with interest on here the many discussions re the diagnosis of ASD and the Traid of Impairments.

The body of knowledge and understanding of ASD has increased dramatically since the 70s, when I first learned a little about it. High functioning autism is relatively new, as a diagnosis. Mis-diagnosis still abounds, because of the overlaping symptoms with, Bipolar, Personality Disorder, OCD, Paranoia, Social Phobia, and I have no doubt, many other conditions.

Many of our accademics, psychiatrists, doctors and researchers, were training before the increased knowledge of ASD was available. Our thinking, as we age, is more likely to follow the old pathways, than to embrace the new, untried ideas. People stick to the proven diagnoses, with which they are familiar.

What we are in need of now, is research into these grey areas of diagnosis, such as the myriad of sensory issues from which many with ASD suffer. For example, the condition Auditory processing disorder, is recognised by those testing hearing, but not necessarily as part of ASD. This could be researched to discover to what extent it is a symptom of ASD or any other mental or physical conditions, or whether it is a "free standing" problem, occuring unrelated to other conditions. This approach could be taken with so many of the "grey area" symptoms of ASD.

There is a great shortage of money for everything. Students are often prepared to undertake work for very little money, to learn and to build a future career and indeed just to get the necessary qualifications to start their career. These students are young, open minded, impressionable and keen to make a difference. They are also the researchers of tommorrow. They will educate our grandchildren and treat their ailments and disorders.

The accademics of today are not listening to us, the NAS are not apparently listening to us. They have minds requiring evidence and proof.

Students often approach this site seeking help with their research. How ever flawed their motives, they want to listen, they need to do research, we could feed these young minds with our knowledge, experience and ideas. If they find us unwilling, unhelpful etc they may seek easier subjects to study.

If we cannot change today, we may at least be able to influence the future.

Parents
  • Hi Codger. Thank you for replying.

    I first heard about Autism when studying to be a teacher in the 70s. We were shown a film of a young boy, maybe 7, twiddling a spoon in his fingers, while staring past the camera at nothing in particular. We were told that he got very upset when having his hair cut or doing a bowel movement, because he hated losing any thing from his body. If this was what autism was believed to be, then I think the notion of "high functioning autism" must have been a breakthrough realisation that autism was not just this terrible brain damaged, non functioning impairment and that there were people who could function in society. In other words, it is one of those hangover descriptions that is now outdated and superceded and therefor fading away, graduallty. Like I said in my post, many of those currently "running" the system are people of my generation who were taught these things in the unenlightened past.

    The world of Autism has moved on but sometimes "we" still use the old language out of habit.

    I believe the discussion to be important, whatever the terminology used.

Reply
  • Hi Codger. Thank you for replying.

    I first heard about Autism when studying to be a teacher in the 70s. We were shown a film of a young boy, maybe 7, twiddling a spoon in his fingers, while staring past the camera at nothing in particular. We were told that he got very upset when having his hair cut or doing a bowel movement, because he hated losing any thing from his body. If this was what autism was believed to be, then I think the notion of "high functioning autism" must have been a breakthrough realisation that autism was not just this terrible brain damaged, non functioning impairment and that there were people who could function in society. In other words, it is one of those hangover descriptions that is now outdated and superceded and therefor fading away, graduallty. Like I said in my post, many of those currently "running" the system are people of my generation who were taught these things in the unenlightened past.

    The world of Autism has moved on but sometimes "we" still use the old language out of habit.

    I believe the discussion to be important, whatever the terminology used.

Children
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