suicide risk and people at the abler end of the autistic spectrum

This might look a bit technical, but it is an important question. How representative is research on autism?

I have come across one or two reports which seem to point to there being a risk of suicide or attempts at suicide particularly amongst adults at the abler end of the autistic spectrum who don't show any other evidence of being at risk.

The problem with these studies is they refer to very few previous reports of this phenomena, and therefore cannot make a strong case. But their inference is that people who are abler are more likely to be working and living in environments where their disability affects them so adversely.

Currently there is a lot of research ongoing into suicide risk amongst adults on the spectrum who suffer significantly from depression. There have been a lot of published papers in the last year.

It might be deduced that the research evidence disproves a risk in abler adults not manifesting depression.

However looking through such research the autistic populations being studied are very specific to one research centre, or one diagnostic service, or one diagnostic method. There doesn't seem to be a lot of research from the broader population of people diagnosed on the autistic spectrum.

I can understand the constraints on research in accessing data nationally, but if some studies are too specific, is there any way of ensuring that there is a proportion of research carried out on more general populations.

The risk otherwise is that overly specific groups of research subjects yield misleading results.

Usually the procedure for research using restricted populations is to set down the limitations of any given study population. This is one way of flagging up the need for other populations to be studied.

It is very important in autism that research looks at a representative enough group of people.

Parents
  • I've been suicidal for most of my adult life. I count it as a 'win' if I have a day where it hasn't crossed my mind. I woke up in hospital one time and cursed them loud and long for treating me against my will ('have the treatment or we'll section you and force it on you') and they wouldn't leave me alone untill one of their useless 'psychiatrists' had talked to me.

    It's with me for most of the time, and waxes and wanes in intensity. Interestingly, this led to my diagnosis of Bipolar, and although it never fitted me, once given, they insisted on it. The result is that for many years I've wasted NHS resources trying to get help with something that I now know to be ASD, but at the time all I knew was how I felt, untill finally I got a GP who made the effort to 'get' me, agreed with my rejection of the Bipolar diagnosis (others just said I was recalcitrant about it) and refer me for proper diagnosis.

    Interestingly, both the frequency and intensity of those thoughts have markedly reduced since I got my diagnosis, especially because I can come on here to talk and listen to others who are like me - the reduction in feeling, and being, missunderstood, alone and isolated is the specific reason for this.

    It is because of my current GP that I can say this, but I've spoken to any number of GPs and psychiatrists in my adult life, any one of whom, with a little interest, could have helped. Certainly, I couldn't be expected to articulate what was happening to me when I couldn't know, yet there is this fundamental aspect of diagnosis that expects the patient to say what the problem is.

    Caught in this cleft stick, suicide was, to me, the only practical solution to ending the misery of my daily existence, and became highly attractive to me. Given our penchant for obsession...

    Apparently, we don't give out the signals that non-AS people give, so 'they' don't read 'us' in the way that they read each other. I think the NHS completely misses the point about how AS people experience their world anyway, so it doesn't surprise me that they don't get this at all, but what's worse is that (my current wonderful GP excepted!) they mostly don't even bother to listen when we tell them.

    I wouldn't like to add up the waste of NHS resources that ensued from my constant visits to GPs etc, but I also resent the waste of my life that ensued from my unresolved search for an answer. You put your trust in trained people, and they let you down through sheer lack of interest or effort. Good grief...

    On the up side, we're here, we know now, and we can advocate for our youngsters and help improve diagnostics - no lack of effort or interest here.

Reply
  • I've been suicidal for most of my adult life. I count it as a 'win' if I have a day where it hasn't crossed my mind. I woke up in hospital one time and cursed them loud and long for treating me against my will ('have the treatment or we'll section you and force it on you') and they wouldn't leave me alone untill one of their useless 'psychiatrists' had talked to me.

    It's with me for most of the time, and waxes and wanes in intensity. Interestingly, this led to my diagnosis of Bipolar, and although it never fitted me, once given, they insisted on it. The result is that for many years I've wasted NHS resources trying to get help with something that I now know to be ASD, but at the time all I knew was how I felt, untill finally I got a GP who made the effort to 'get' me, agreed with my rejection of the Bipolar diagnosis (others just said I was recalcitrant about it) and refer me for proper diagnosis.

    Interestingly, both the frequency and intensity of those thoughts have markedly reduced since I got my diagnosis, especially because I can come on here to talk and listen to others who are like me - the reduction in feeling, and being, missunderstood, alone and isolated is the specific reason for this.

    It is because of my current GP that I can say this, but I've spoken to any number of GPs and psychiatrists in my adult life, any one of whom, with a little interest, could have helped. Certainly, I couldn't be expected to articulate what was happening to me when I couldn't know, yet there is this fundamental aspect of diagnosis that expects the patient to say what the problem is.

    Caught in this cleft stick, suicide was, to me, the only practical solution to ending the misery of my daily existence, and became highly attractive to me. Given our penchant for obsession...

    Apparently, we don't give out the signals that non-AS people give, so 'they' don't read 'us' in the way that they read each other. I think the NHS completely misses the point about how AS people experience their world anyway, so it doesn't surprise me that they don't get this at all, but what's worse is that (my current wonderful GP excepted!) they mostly don't even bother to listen when we tell them.

    I wouldn't like to add up the waste of NHS resources that ensued from my constant visits to GPs etc, but I also resent the waste of my life that ensued from my unresolved search for an answer. You put your trust in trained people, and they let you down through sheer lack of interest or effort. Good grief...

    On the up side, we're here, we know now, and we can advocate for our youngsters and help improve diagnostics - no lack of effort or interest here.

Children
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