suicide risk and people at the abler end of the autistic spectrum

This might look a bit technical, but it is an important question. How representative is research on autism?

I have come across one or two reports which seem to point to there being a risk of suicide or attempts at suicide particularly amongst adults at the abler end of the autistic spectrum who don't show any other evidence of being at risk.

The problem with these studies is they refer to very few previous reports of this phenomena, and therefore cannot make a strong case. But their inference is that people who are abler are more likely to be working and living in environments where their disability affects them so adversely.

Currently there is a lot of research ongoing into suicide risk amongst adults on the spectrum who suffer significantly from depression. There have been a lot of published papers in the last year.

It might be deduced that the research evidence disproves a risk in abler adults not manifesting depression.

However looking through such research the autistic populations being studied are very specific to one research centre, or one diagnostic service, or one diagnostic method. There doesn't seem to be a lot of research from the broader population of people diagnosed on the autistic spectrum.

I can understand the constraints on research in accessing data nationally, but if some studies are too specific, is there any way of ensuring that there is a proportion of research carried out on more general populations.

The risk otherwise is that overly specific groups of research subjects yield misleading results.

Usually the procedure for research using restricted populations is to set down the limitations of any given study population. This is one way of flagging up the need for other populations to be studied.

It is very important in autism that research looks at a representative enough group of people.

Parents
  • As the foregoing dialogues reveal, the meaning of autism has become blurred.

    I have recently come across the charity Papyrus (www.papyrus-uk.org) This is a national confidential helpline for young people contemplating suicide, or not coping with life. The service is called HOPEline.

    This was a presentation at a health meeting, and afterwards I asked the speaker about autism. Maybe they misunderstood me, and I don't want the organisation to feel I'm misrepresenting them - this is just what came back to me in an informal chat.

    I explained my concerns about more manageable autism giving rise to suicide risk without intermediate signs of depression, just because of the life difficulties. What I think I was told was - they only deal with young people with marked autism.

    This is an organisation that purports to help any child not coping with life and having suicidal thoughts, but where autism is involved - mild autism doesn't count?

    The problem, as the posters above have explained, is that anything less than full-on autism, no speech staring at the wall and rocking, seems to have entered the public perception as making excuses for naughty children, grumpy teenagers and failing young adults.

    In the context of suicide this is really worrying. Oh we don't count anything autistic if the person approaches living an independent life because then they are cured and it doesn't matter any more..........

    And NAS really needs to address this seriously. I don't think NAS is as committed to young poeople at the abler end as they make out.

    How can manageable autism not count as a factor in suicide risk?

Reply
  • As the foregoing dialogues reveal, the meaning of autism has become blurred.

    I have recently come across the charity Papyrus (www.papyrus-uk.org) This is a national confidential helpline for young people contemplating suicide, or not coping with life. The service is called HOPEline.

    This was a presentation at a health meeting, and afterwards I asked the speaker about autism. Maybe they misunderstood me, and I don't want the organisation to feel I'm misrepresenting them - this is just what came back to me in an informal chat.

    I explained my concerns about more manageable autism giving rise to suicide risk without intermediate signs of depression, just because of the life difficulties. What I think I was told was - they only deal with young people with marked autism.

    This is an organisation that purports to help any child not coping with life and having suicidal thoughts, but where autism is involved - mild autism doesn't count?

    The problem, as the posters above have explained, is that anything less than full-on autism, no speech staring at the wall and rocking, seems to have entered the public perception as making excuses for naughty children, grumpy teenagers and failing young adults.

    In the context of suicide this is really worrying. Oh we don't count anything autistic if the person approaches living an independent life because then they are cured and it doesn't matter any more..........

    And NAS really needs to address this seriously. I don't think NAS is as committed to young poeople at the abler end as they make out.

    How can manageable autism not count as a factor in suicide risk?

Children
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