suicide risk and people at the abler end of the autistic spectrum

This might look a bit technical, but it is an important question. How representative is research on autism?

I have come across one or two reports which seem to point to there being a risk of suicide or attempts at suicide particularly amongst adults at the abler end of the autistic spectrum who don't show any other evidence of being at risk.

The problem with these studies is they refer to very few previous reports of this phenomena, and therefore cannot make a strong case. But their inference is that people who are abler are more likely to be working and living in environments where their disability affects them so adversely.

Currently there is a lot of research ongoing into suicide risk amongst adults on the spectrum who suffer significantly from depression. There have been a lot of published papers in the last year.

It might be deduced that the research evidence disproves a risk in abler adults not manifesting depression.

However looking through such research the autistic populations being studied are very specific to one research centre, or one diagnostic service, or one diagnostic method. There doesn't seem to be a lot of research from the broader population of people diagnosed on the autistic spectrum.

I can understand the constraints on research in accessing data nationally, but if some studies are too specific, is there any way of ensuring that there is a proportion of research carried out on more general populations.

The risk otherwise is that overly specific groups of research subjects yield misleading results.

Usually the procedure for research using restricted populations is to set down the limitations of any given study population. This is one way of flagging up the need for other populations to be studied.

It is very important in autism that research looks at a representative enough group of people.

Parents
  • Hi Coogy, you have totally missed my point here. Those of us with ASD and our families, are not finding acceptance in the wider community, in which is the misapprehensions outlined above, all to frequently predominate.

    I am undiagnosed as was my daughter. I had no idea why she had such tantrums, and if you have never been in a situation of drawing a group of spectators, who make comments like "I'll get a policeman to you, if you carry on like that" etc and you desparately want to extricate yourself and your children, before they start seeing the policeman as a person to fear, or worse still, turn their tantrum into aggression towards the interfering spectator, well, you are fortunate indeed.

    Predudice is enormous, disbelief predominates, (see channel IVs born naughty) particularly when there is no diagnosis, just a parent at their wits end, disbelieved by family, friends, neighbours, aquaintances, passers by. It doesn't end in adulthood, with meltdowns continuing and an ever increasing string of broken relationships in the work place and at home.

    If you follow my mental trajectory, you will see it is straight down into the bottomless pit, where suicide is all too common and we lack the verbal communication skills and understanding of our own emotions and often even lack the ability to ask for help.

    I think that the "label" is a cheap way to help the world at large begin to accept the prevelance of autism.

    The NHS has not got the finances to help us all, so money is targeted at children.

Reply
  • Hi Coogy, you have totally missed my point here. Those of us with ASD and our families, are not finding acceptance in the wider community, in which is the misapprehensions outlined above, all to frequently predominate.

    I am undiagnosed as was my daughter. I had no idea why she had such tantrums, and if you have never been in a situation of drawing a group of spectators, who make comments like "I'll get a policeman to you, if you carry on like that" etc and you desparately want to extricate yourself and your children, before they start seeing the policeman as a person to fear, or worse still, turn their tantrum into aggression towards the interfering spectator, well, you are fortunate indeed.

    Predudice is enormous, disbelief predominates, (see channel IVs born naughty) particularly when there is no diagnosis, just a parent at their wits end, disbelieved by family, friends, neighbours, aquaintances, passers by. It doesn't end in adulthood, with meltdowns continuing and an ever increasing string of broken relationships in the work place and at home.

    If you follow my mental trajectory, you will see it is straight down into the bottomless pit, where suicide is all too common and we lack the verbal communication skills and understanding of our own emotions and often even lack the ability to ask for help.

    I think that the "label" is a cheap way to help the world at large begin to accept the prevelance of autism.

    The NHS has not got the finances to help us all, so money is targeted at children.

Children
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