suicide risk and people at the abler end of the autistic spectrum

This might look a bit technical, but it is an important question. How representative is research on autism?

I have come across one or two reports which seem to point to there being a risk of suicide or attempts at suicide particularly amongst adults at the abler end of the autistic spectrum who don't show any other evidence of being at risk.

The problem with these studies is they refer to very few previous reports of this phenomena, and therefore cannot make a strong case. But their inference is that people who are abler are more likely to be working and living in environments where their disability affects them so adversely.

Currently there is a lot of research ongoing into suicide risk amongst adults on the spectrum who suffer significantly from depression. There have been a lot of published papers in the last year.

It might be deduced that the research evidence disproves a risk in abler adults not manifesting depression.

However looking through such research the autistic populations being studied are very specific to one research centre, or one diagnostic service, or one diagnostic method. There doesn't seem to be a lot of research from the broader population of people diagnosed on the autistic spectrum.

I can understand the constraints on research in accessing data nationally, but if some studies are too specific, is there any way of ensuring that there is a proportion of research carried out on more general populations.

The risk otherwise is that overly specific groups of research subjects yield misleading results.

Usually the procedure for research using restricted populations is to set down the limitations of any given study population. This is one way of flagging up the need for other populations to be studied.

It is very important in autism that research looks at a representative enough group of people.

Parents
  • I may have misunderstood your point and I have re-read the above a number of times, but I'm not sure I concur with you Marjorie on your comment or it's relavance to a suicide thread.

    I may be a little naive, but i'm not sure I know of anyone that would claim to be Autistic or Aspergers to excuse 'bad behaviour.' Additionally, having the label can bring with it it's own unique problems. Who would willingly want to open themselves up to that, to excuse behaviour? Far from acting out, most of the Aspies I know, myself included, work very had to get it right and to keep socially unacceptable behaviours hidden. The very thing that can often make them unwell if masked for too long or not given an appropiate or alternative outlet.

    I think viewing Aspergers & Autism as a 'fashionable at the moment' is incredibly damaging and does little to acknowledge the huge steps made to both raise awareness in the wider community and to greater learn & understand the condition and all it's presentations. Not so long ago, anyone with mental health conditions or not condsidered 'normal' was institutionalized. Everyone, In the same open wards and largely medicated rather than supported for their individual, unique needs and remaining in the familiar and often nurturing surroundings of their family unit.

    Of course it's possible some people are misdiagnosed, but i believe many more are undiagnosed. Autism isn't a new condition. It's been around for a long period  of time. It's our understanding of it that's lead to the greater numbers being diagnosed, not the fact that its fashionable, in my opinion.

    Going back to the original thread, I'm of the opinion that it's not only our inabilty to cope with some of lifes difficulties that can be a factor in the contemplation of suicide in some individuals, but also the lack of understanding about our level of need and indeed, on occassion, the cynacism that accompanies it directed at us by others.

    If you are not taken seriously in life by others, as in the case of my brother, what is the point? As with Electra's comments, I also believe an Aspies lows are very intense. The world needs to understand that and take it seriously if suicide numbers are to be reduced among the Aspie community. The need to be heard for most individuals is great, if you have a social communication difficulty, I believe the need is even greater.

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  • I may have misunderstood your point and I have re-read the above a number of times, but I'm not sure I concur with you Marjorie on your comment or it's relavance to a suicide thread.

    I may be a little naive, but i'm not sure I know of anyone that would claim to be Autistic or Aspergers to excuse 'bad behaviour.' Additionally, having the label can bring with it it's own unique problems. Who would willingly want to open themselves up to that, to excuse behaviour? Far from acting out, most of the Aspies I know, myself included, work very had to get it right and to keep socially unacceptable behaviours hidden. The very thing that can often make them unwell if masked for too long or not given an appropiate or alternative outlet.

    I think viewing Aspergers & Autism as a 'fashionable at the moment' is incredibly damaging and does little to acknowledge the huge steps made to both raise awareness in the wider community and to greater learn & understand the condition and all it's presentations. Not so long ago, anyone with mental health conditions or not condsidered 'normal' was institutionalized. Everyone, In the same open wards and largely medicated rather than supported for their individual, unique needs and remaining in the familiar and often nurturing surroundings of their family unit.

    Of course it's possible some people are misdiagnosed, but i believe many more are undiagnosed. Autism isn't a new condition. It's been around for a long period  of time. It's our understanding of it that's lead to the greater numbers being diagnosed, not the fact that its fashionable, in my opinion.

    Going back to the original thread, I'm of the opinion that it's not only our inabilty to cope with some of lifes difficulties that can be a factor in the contemplation of suicide in some individuals, but also the lack of understanding about our level of need and indeed, on occassion, the cynacism that accompanies it directed at us by others.

    If you are not taken seriously in life by others, as in the case of my brother, what is the point? As with Electra's comments, I also believe an Aspies lows are very intense. The world needs to understand that and take it seriously if suicide numbers are to be reduced among the Aspie community. The need to be heard for most individuals is great, if you have a social communication difficulty, I believe the need is even greater.

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