suicide risk and people at the abler end of the autistic spectrum

This might look a bit technical, but it is an important question. How representative is research on autism?

I have come across one or two reports which seem to point to there being a risk of suicide or attempts at suicide particularly amongst adults at the abler end of the autistic spectrum who don't show any other evidence of being at risk.

The problem with these studies is they refer to very few previous reports of this phenomena, and therefore cannot make a strong case. But their inference is that people who are abler are more likely to be working and living in environments where their disability affects them so adversely.

Currently there is a lot of research ongoing into suicide risk amongst adults on the spectrum who suffer significantly from depression. There have been a lot of published papers in the last year.

It might be deduced that the research evidence disproves a risk in abler adults not manifesting depression.

However looking through such research the autistic populations being studied are very specific to one research centre, or one diagnostic service, or one diagnostic method. There doesn't seem to be a lot of research from the broader population of people diagnosed on the autistic spectrum.

I can understand the constraints on research in accessing data nationally, but if some studies are too specific, is there any way of ensuring that there is a proportion of research carried out on more general populations.

The risk otherwise is that overly specific groups of research subjects yield misleading results.

Usually the procedure for research using restricted populations is to set down the limitations of any given study population. This is one way of flagging up the need for other populations to be studied.

It is very important in autism that research looks at a representative enough group of people.

Parents
  • Marjorie, your last paragraph is exactly my experience. I was 'diagnosed' as Bipolar. I never agreed with it and said so whenever I had the opportunity. I was then negatively labeled as 'uncooperative' and 'not wanting to get better'. I've had every pill known to them as treatment for my condition, and while these pillocks were fiddling about, my life was poo to the point where the only reasonable option seemed to be suicide.

    Hurrah for my new GP! After knowing me for some time, she volunteered to me that she agreed with me - she couldn't see Bipolar and referred me for reassessment. After a lot of trauma caused by yet another ignorant 'psychiatrist' I was finally referred to someone who actually knew what he was doing, and got my diagnosis.

    Since then, I still have my moments but they have less impact on me because I can just keep telling myself that it's 'of the moment' and that it will pass. Clearly, then. there are two aspects to this subject and you and Longman have it nailed. If you only examine suicidaly depressed people, but don't re-examine long term mental imbalance in people, who have presented themselves for examination, then a sub-group is bound to be ASD. This is meaningless information. You'd have to trawl the entire population, and they would have to be honest (won't happen!) before you could definitely state that higher functioning, or any other type, ASD increases the suicide risk.

    I think that the biggest suicide risk with ASD is the abuse, lack of understanding, difficulty getting a diagnosis, and generally not being listened to, that can make suicide an attractive option. It was so for me, I'd rather kill myself than go through that again.

Reply
  • Marjorie, your last paragraph is exactly my experience. I was 'diagnosed' as Bipolar. I never agreed with it and said so whenever I had the opportunity. I was then negatively labeled as 'uncooperative' and 'not wanting to get better'. I've had every pill known to them as treatment for my condition, and while these pillocks were fiddling about, my life was poo to the point where the only reasonable option seemed to be suicide.

    Hurrah for my new GP! After knowing me for some time, she volunteered to me that she agreed with me - she couldn't see Bipolar and referred me for reassessment. After a lot of trauma caused by yet another ignorant 'psychiatrist' I was finally referred to someone who actually knew what he was doing, and got my diagnosis.

    Since then, I still have my moments but they have less impact on me because I can just keep telling myself that it's 'of the moment' and that it will pass. Clearly, then. there are two aspects to this subject and you and Longman have it nailed. If you only examine suicidaly depressed people, but don't re-examine long term mental imbalance in people, who have presented themselves for examination, then a sub-group is bound to be ASD. This is meaningless information. You'd have to trawl the entire population, and they would have to be honest (won't happen!) before you could definitely state that higher functioning, or any other type, ASD increases the suicide risk.

    I think that the biggest suicide risk with ASD is the abuse, lack of understanding, difficulty getting a diagnosis, and generally not being listened to, that can make suicide an attractive option. It was so for me, I'd rather kill myself than go through that again.

Children
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