What happens next?

My son is suspected ASD. The Community Paediatrician referred him and I received lotsof questionnaires yesterday. They are all filled out, and will be posted very soon. (Need to print a photo!)

But what happens next? And how soon? Are the questionnaires assessing if he needs assessment or are they part of his assessments?

Sorry, but I am very new to the actual assessment part. We have been fighting for 5 years to get to this point.

Parents
  • Oh, I have had it up to my eyeballs with those who self diagnose. Had one today. She told me that she had done a course (She works in a school) on Autism, and it sounded much like her teenage son. I asked her whether she ever thought there were problems before, she said no. I am not saying he isn't autistic, but it does seem that with autism awareness, there are more people that think they are on the spectrum. I am now going to point out that it is a developmet problem, and that there is a triad of impairments!

    I know for a fact that my son has difficulties, but can't say for certain it is Autism. Myself and the professionals are all in agreement that he has communication and social difficulties, plus sensory problems, and a lot does point to Autism. But as long as he is assessed fully, I will get the *right* diagnosis for him. He needs the right help, and he is getting it now even without the diagnosis and he is coping much better at school for it. In a way, we have worked hard to overcome many difficulties with him (dealing with the melt downs, the rigidity of thought, the lack of understanding of jokes etc) and he is much better in many respects. I worry that this will mean he doesn't get diagnosed properly. But at the same time, he has already been noticed by an Ed Psych who was observing a girl in his nurture group, and the Ed Psych mentioned he appeared to be on the spectrum.

    I just want to know what is going on with him, how we can help him, and make sure he is happy and functioning.

    I have a very special child. He is amazing. He drives me nuts! He is so frustrating! But the thing I now know is that it will be harder if we try and make him fit in. He never will. It is how we deal with things that will make life easier, and we will know how when we have the right answers.

    I try not to read too much into conditions. I did at one point and I went crazy. I thought he couldn't be autistic because he wasn't having a melt down once an hour, then he must be autistic because he freaks out when routine is changed. Then we thought something else, and then something else.

    I now have to trust the professionals. We will have some sort of diagnosis, what that will be is unknown. The teachers and SENCo are convinced he is autistic. I think if he is he is high functioning. But hey ho. I could speculate all day.

    Sorry, I've gone on a bit here!  

Reply
  • Oh, I have had it up to my eyeballs with those who self diagnose. Had one today. She told me that she had done a course (She works in a school) on Autism, and it sounded much like her teenage son. I asked her whether she ever thought there were problems before, she said no. I am not saying he isn't autistic, but it does seem that with autism awareness, there are more people that think they are on the spectrum. I am now going to point out that it is a developmet problem, and that there is a triad of impairments!

    I know for a fact that my son has difficulties, but can't say for certain it is Autism. Myself and the professionals are all in agreement that he has communication and social difficulties, plus sensory problems, and a lot does point to Autism. But as long as he is assessed fully, I will get the *right* diagnosis for him. He needs the right help, and he is getting it now even without the diagnosis and he is coping much better at school for it. In a way, we have worked hard to overcome many difficulties with him (dealing with the melt downs, the rigidity of thought, the lack of understanding of jokes etc) and he is much better in many respects. I worry that this will mean he doesn't get diagnosed properly. But at the same time, he has already been noticed by an Ed Psych who was observing a girl in his nurture group, and the Ed Psych mentioned he appeared to be on the spectrum.

    I just want to know what is going on with him, how we can help him, and make sure he is happy and functioning.

    I have a very special child. He is amazing. He drives me nuts! He is so frustrating! But the thing I now know is that it will be harder if we try and make him fit in. He never will. It is how we deal with things that will make life easier, and we will know how when we have the right answers.

    I try not to read too much into conditions. I did at one point and I went crazy. I thought he couldn't be autistic because he wasn't having a melt down once an hour, then he must be autistic because he freaks out when routine is changed. Then we thought something else, and then something else.

    I now have to trust the professionals. We will have some sort of diagnosis, what that will be is unknown. The teachers and SENCo are convinced he is autistic. I think if he is he is high functioning. But hey ho. I could speculate all day.

    Sorry, I've gone on a bit here!  

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