2 year old diagnosis feeling alone?

My son is going to be 3 in September, we had concerns that things weren't 'right' from around 1yr old and as other children around my son developed speech and interaction my little boy has gone more and more into his own little world. his been assessed initially by a peadiatrician who has referred him for a STARRS assesment she said to me 'I'm going to mention autism to you as you will hear this a lot from now on' no firm diagnosis as of yet but upon reading more into the condition it now explains a lot of his behaviour, not answering to his name, very little eye contact, repetitive play etc etC. His behaviour is becoming more difficult to deal with everyday, we have his baby brother who's now 4months old and if he cries my son will scream and scream and get very distressed and he doesn't understand what we say so it's very hard to try and explain he gets in such a state over lots of simple things and I can see its distressing him, but I have been given no ways to cope, no techniques nothing. i feel we have been told 'he may have autism' and to get on with it ive called round to check on his referrals to be told it's 'a long wait' his initial assesment was in April.

I was just wondering if anyone could advise? As everyday that passes I feel we loose my son a little bit more :( and I feel so down like I can't help him as I don't know how I wish I could go into his little world and help him understand, but with no support even groups in our area there seems to be none! Please anyone with any advice would be greatly appreciated xx

Parents
  • Thank you both for your replies, it's all very new to me too and as he gets older he displays different behaviours, even today when another screaming round began (a particularly bad one) my son began to rock his head back and forth it was scary to watch as he looked so unhappy but he also doesn't like to be spoken to he gets louder or if you touch him. he does have his room to go to where he spends a lot of time and I understand he feels safe in there but if baby screams even from his room he will scream  I havnt tried headphones so that could be a good idea to try thank you

Reply
  • Thank you both for your replies, it's all very new to me too and as he gets older he displays different behaviours, even today when another screaming round began (a particularly bad one) my son began to rock his head back and forth it was scary to watch as he looked so unhappy but he also doesn't like to be spoken to he gets louder or if you touch him. he does have his room to go to where he spends a lot of time and I understand he feels safe in there but if baby screams even from his room he will scream  I havnt tried headphones so that could be a good idea to try thank you

Children
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