Can you please point me in the right direction

I know a few of you will know of past problems and i am trying to get myself sorted,stopped gambling and am trying hard to put on weight as i have lost loads of it and under 8 stone now.

All this is through stress im sure, i am turning into a nervous wreck, when is my child going to punch me again,or kick me or push me or gauge my skin.

Now after a meltdown he is saying he wants to kill himself or repeadedly calls himself the same name over and over and over.

We are on pins all the time,have to supervise him all the time and yet to talk to him beifly youd think he was normal.

Teacher has picked up on a few things in school and had said he struggls with communcation and that hes on the spectrum.

However i go speak to the peadatrcian and am not quite sure he takes us seriously.

We have a private ot comming into school after they saw him in meltdown mode in the playground and i told them i was tired, but hes as good as gold in school,this i dont get?

we have now been re reffered to cahms through our wonderful gp, now the peadatrician says autistic traits and sensory issues,however i feel really strongly that it is more,we have been in the system since he was 2 and hes nearly 8.

I am sick of fighting to try and get anywhere and feel like think sod it,but then its my sons that suffers if he does not get the help he needs.

So we have cahms in july, do i be completely honest with them? warts and all?

I had a lady come see me from the family fund,and she said he must be ok because he copes ok at school and we got refused, i think that has made me feel 100 times worst.

Thanks for reading guys and im sorry it always seems like im moaning, but its been a long hard battle that i feel like im losing.

Parents
  • I know I'll get slapped down for this, but to be accurate, most people experience meltdowns (have you ever had one of those bad days when everything goes wrong and eventually you 'lose your rag' over something trivial that's the last straw?).

    It is just the magnitude and frequency that differs with autistic spectrum.

    It isn't really the meltdown that's the issue here, it's the lifestyle circumstances of someone with autism that's important. If it was feasible, if you want something to video, video eight hours of life with autism. Then perhaps you would understand the meltdown.

    Perhaps he wouldn't notice being videod during a meltdown. But a video of a meltdown is not going to help the school understand what is happening.

    The difficulty with videoing his life in school however is that parental permission of everyone likely to be involved is mandatory, and how do you film the things that only happen because they are 'unseen'.

    However NAS could help many parents by producing a video using actors, based on collective knowledge of the kinds of things that go on in schools (they've done this on a small scale as video clips of social exclusion).

    If school teachers could watch a video of all the subtle hurts, snide comments, pushing and shoving, dirty tricks, name calling etc that many children on the spectrum suffer in school, out of sight of the teachers, they might understand. So even if they manage to bottle it up through school, it is inevitable they explode at home.

    Indeed there will never be sufficient understanding of the hell children on the spectrum go through until something like this is done, and used as an educational tool.

    I was ever told the old 'sticks and stones will break your bones but words will never hurt you' myth. If you've got autism or aspergers your reactions to words are entertaining for others around you. It becomes fun to exploit your social vulnerability, literal understanding, and reaction to excessive visual and aural stimuli. That way words do hurt.

Reply
  • I know I'll get slapped down for this, but to be accurate, most people experience meltdowns (have you ever had one of those bad days when everything goes wrong and eventually you 'lose your rag' over something trivial that's the last straw?).

    It is just the magnitude and frequency that differs with autistic spectrum.

    It isn't really the meltdown that's the issue here, it's the lifestyle circumstances of someone with autism that's important. If it was feasible, if you want something to video, video eight hours of life with autism. Then perhaps you would understand the meltdown.

    Perhaps he wouldn't notice being videod during a meltdown. But a video of a meltdown is not going to help the school understand what is happening.

    The difficulty with videoing his life in school however is that parental permission of everyone likely to be involved is mandatory, and how do you film the things that only happen because they are 'unseen'.

    However NAS could help many parents by producing a video using actors, based on collective knowledge of the kinds of things that go on in schools (they've done this on a small scale as video clips of social exclusion).

    If school teachers could watch a video of all the subtle hurts, snide comments, pushing and shoving, dirty tricks, name calling etc that many children on the spectrum suffer in school, out of sight of the teachers, they might understand. So even if they manage to bottle it up through school, it is inevitable they explode at home.

    Indeed there will never be sufficient understanding of the hell children on the spectrum go through until something like this is done, and used as an educational tool.

    I was ever told the old 'sticks and stones will break your bones but words will never hurt you' myth. If you've got autism or aspergers your reactions to words are entertaining for others around you. It becomes fun to exploit your social vulnerability, literal understanding, and reaction to excessive visual and aural stimuli. That way words do hurt.

Children
No Data