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Can you please point me in the right direction

mumof4boys772

I know a few of you will know of past problems and i am trying to get myself sorted,stopped gambling and am trying hard to put on weight as i have lost loads of it and under 8 stone now.

All this is through stress im sure, i am turning into a nervous wreck, when is my child going to punch me again,or kick me or push me or gauge my skin.

Now after a meltdown he is saying he wants to kill himself or repeadedly calls himself the same name over and over and over.

We are on pins all the time,have to supervise him all the time and yet to talk to him beifly youd think he was normal.

Teacher has picked up on a few things in school and had said he struggls with communcation and that hes on the spectrum.

However i go speak to the peadatrcian and am not quite sure he takes us seriously.

We have a private ot comming into school after they saw him in meltdown mode in the playground and i told them i was tired, but hes as good as gold in school,this i dont get?

we have now been re reffered to cahms through our wonderful gp, now the peadatrician says autistic traits and sensory issues,however i feel really strongly that it is more,we have been in the system since he was 2 and hes nearly 8.

I am sick of fighting to try and get anywhere and feel like think sod it,but then its my sons that suffers if he does not get the help he needs.

So we have cahms in july, do i be completely honest with them? warts and all?

I had a lady come see me from the family fund,and she said he must be ok because he copes ok at school and we got refused, i think that has made me feel 100 times worst.

Thanks for reading guys and im sorry it always seems like im moaning, but its been a long hard battle that i feel like im losing.

Parents

  • Eamples of sensory issues, well we cannot use an outside toilet and have not been able to for around 4 years, he will have meltdowns in supermarkets, he will if someone has an expression on theyre face that is not normal he will kick off, in crows he will scream or sing at the top of his voice,it took us a few years to be able to use the hoover, he hates having his hair brushed, having a haircut is the cause of a huge meltdown and screaming, will not wash face, has to change clothes when wet, constantly harrasses his brother.

    He has self stimulated since he was around 6 months old will go through periods of spinnng, will constantly jump up and down flapping hands.

    Cant actually get out what he wants to say, if he has a meltdown you cant get to the bottom of it or you may hours or days later.

    Has no danger awareness, can be awake till around 1/2am

    the list is endless to be honest.

Reply

  • Eamples of sensory issues, well we cannot use an outside toilet and have not been able to for around 4 years, he will have meltdowns in supermarkets, he will if someone has an expression on theyre face that is not normal he will kick off, in crows he will scream or sing at the top of his voice,it took us a few years to be able to use the hoover, he hates having his hair brushed, having a haircut is the cause of a huge meltdown and screaming, will not wash face, has to change clothes when wet, constantly harrasses his brother.

    He has self stimulated since he was around 6 months old will go through periods of spinnng, will constantly jump up and down flapping hands.

    Cant actually get out what he wants to say, if he has a meltdown you cant get to the bottom of it or you may hours or days later.

    Has no danger awareness, can be awake till around 1/2am

    the list is endless to be honest.

Children
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