Getting assessed as an adult

Hi, I am currently waiting for an ASC adult assessment- it's been over a month since I first heard from my local diagnostic service.  Since I first asked my GP I have found out how many professionals are involved in this, and am finding the idea of being observed and analysed by so many people very intimidating. For those who have gone through the process, would you recommend it, and was it intrusive?  I feel that some of the support that I could access may be beneficial should I get a diagnosis, however I don't need access to any social services currently.

Does anyone have any advice on this?

Many thanks

Parents
  • I had the assessments last year (45 year old female). I had all te questionnaires to fill in first then the two assessments. As my parents are still around my mother came to the first assessment. Then the second assessment was spent playing. Hmm yep, playing. Naturally I was anxious about the whole process. I carefully did not learn too much before hand because I had read whilst there are common traits Aspergers/Autism we each have our own unique set of difficulties in with it. I had been referred for Aspergers but came back as Autism. Well Atypical autism 2.3rds autistic which puts me on the ASD spectrum and does explain various parts of my life (having read up since). I have had a year's worth of appointments finding out how autism affects me and found an adult in the community whom I can turn to when in my own distress. Little things can trigger moments for me  I am used to the medical world being born with heart issues and really find social talking hard to do trying to explain what is wrong.  I think it depends where you are at in life? If you finding things hard and at a brick wall then the diagnosis and support helpful and liberating. Even the suggestion was liberating for me. It don't resolve anything but people go more than half way to help me now when I turn to them. They have a starting point of how to help me. I have a starting point at being able to begin to say what is wrong. It maynt be anything actually wrong. Just too much, overwhelmed with something. Autism explains all that. It like a comfort blanket for me as I found it liberating rather than a threat.  So it really depends where you are in life as an adult. If you feel you benefit from support of understanding yourself or needing others to understand you then yes go for the diagnosis. Having got so far as you have I would continue with the diagnosis anyway. It took over a year to get the assessment appointments.  The psychologist who did my refereal told me to get my hands on anything I can to help that is asperger's even if it don't come back as that, to live life as though it is that. It didn't come back as apergers, but ayptical autism. The card I carry is also like a comfort blanket. I never used the card formally. I had put one contact on it with their agreement and when they had moved on it gave me reason to look elswhere and feel throughly supported by the named contact. They have seen how they can help me and I am accepting their help too. I was anxious about the assessment/diagnosis. But I had desperately wanted the diagnosis as it was a way forward for me.  At times I hate autism because of the way I react but it has brought me more in touch with people whom I have met but didn't know and they are helping me in ways I would never have thought before the diagnosis. It don't resolve anything at all. Just allows others to know how to help me where I need help :-)

Reply
  • I had the assessments last year (45 year old female). I had all te questionnaires to fill in first then the two assessments. As my parents are still around my mother came to the first assessment. Then the second assessment was spent playing. Hmm yep, playing. Naturally I was anxious about the whole process. I carefully did not learn too much before hand because I had read whilst there are common traits Aspergers/Autism we each have our own unique set of difficulties in with it. I had been referred for Aspergers but came back as Autism. Well Atypical autism 2.3rds autistic which puts me on the ASD spectrum and does explain various parts of my life (having read up since). I have had a year's worth of appointments finding out how autism affects me and found an adult in the community whom I can turn to when in my own distress. Little things can trigger moments for me  I am used to the medical world being born with heart issues and really find social talking hard to do trying to explain what is wrong.  I think it depends where you are at in life? If you finding things hard and at a brick wall then the diagnosis and support helpful and liberating. Even the suggestion was liberating for me. It don't resolve anything but people go more than half way to help me now when I turn to them. They have a starting point of how to help me. I have a starting point at being able to begin to say what is wrong. It maynt be anything actually wrong. Just too much, overwhelmed with something. Autism explains all that. It like a comfort blanket for me as I found it liberating rather than a threat.  So it really depends where you are in life as an adult. If you feel you benefit from support of understanding yourself or needing others to understand you then yes go for the diagnosis. Having got so far as you have I would continue with the diagnosis anyway. It took over a year to get the assessment appointments.  The psychologist who did my refereal told me to get my hands on anything I can to help that is asperger's even if it don't come back as that, to live life as though it is that. It didn't come back as apergers, but ayptical autism. The card I carry is also like a comfort blanket. I never used the card formally. I had put one contact on it with their agreement and when they had moved on it gave me reason to look elswhere and feel throughly supported by the named contact. They have seen how they can help me and I am accepting their help too. I was anxious about the assessment/diagnosis. But I had desperately wanted the diagnosis as it was a way forward for me.  At times I hate autism because of the way I react but it has brought me more in touch with people whom I have met but didn't know and they are helping me in ways I would never have thought before the diagnosis. It don't resolve anything at all. Just allows others to know how to help me where I need help :-)

Children
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